This month I thought I'd share with you a poem my wife wrote shortly after Graham's diagnosis.
The conversations in my mind
have grown too big, too intense
for the grocery aisle,
or the sandbox in the park.
I am mapping out miracles,
scheduling brain scans, special meals
and blood work;
opening my door to therapists at seven am,
and pushing my true thoughts
My silence is trying to grasp
how to find time for a marriage
that has been placed in the wings
while my son’s life
is choreographed on center stage.
My silence holds possible dreams
of a normal life;
with family vacations, car trips,
and time not scheduled.
It's a quiet and powerful poem, a conversation that many of us carry in our heads. Thank you for posting it.ReplyDelete
Thank you so much for sharing this.ReplyDelete
The part that resonates the strongest for me right now is the idea of being in centre stage. I surprised myself by wishing most of all that I could pull my little man away from all this attention and keep him (and us) for us. I wanted that cocoon of family to be enough to take him into his future.
Your poem is both beautifully true and truly beautiful to me.
wow. that is beautiful, powerful, sad and hopeful all in one. I think it speaks to all of us. Thank you for sharing it.ReplyDelete
This is incredible.ReplyDelete
For more info about Jennie's work with mom's of kids with special needs go to www.lifespeakspoetrytherapy.comReplyDelete
Gorgeous poem. All too well understood.ReplyDelete