Thursday, April 11, 2019

Boston Children's Hospital's "Thriving Blog"

My son Nicholas is diagnosed with Prader Willi Syndrome.

He has many complex medical issues.

He visits with many specialists located at Boston Children's Hospital.

Recently, he had spinal fusion surgery performed here

to correct the severe curvature of his spine.








Boston Children's Hospital has a blog named "Thriving"

In it, they write of their many unique patients and their very touching stories.

Today, Nick's adventure is featured on their blog:

Click this link: Boston Children's Hospital/Thriving

 to read our story and many others just like it.

As Hopeful Parents,

I believe many of these pieces

will resonate with so many of you who visit this blog.

I hope you enjoy reading them

Lisa

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Lisa Peters writes about family life at:

 On a Life Less Perfect

Saturday, January 5, 2019

We Are Building A Wall!!!

I kid you not, we actually do want to build a wall.  

This wall is actually one that will be helpful to our daughter.  It's not what it will keep out but what it will keep in.  

We have been swimming in medical equipment, supplies, and the multiple day to day things needed to keep a medically fragile kid alive.  It's a good thing, but our house of 1,200 square feet is bulging at the seams.  

A lovely woman from the Closet Factory reached out to me after hearing my internet cries for help and organization.  She designed a system that will not only hold supplies but last us a lifetime.  

I'm sharing our Go Fund Me Link.  You don't have to donate, if you do that's awesome, but if you can't PLEASE SHARE IT!  Help us build our wall!!  


Here is the link!  CLICK HERE Thanks for your help!