Ok, I confess, I'm too tired from our week's "vacation" in the hospital and the subsequent dysregulation and lack of sleep that the change back to home has wrought for my boy. He's on the mend now and, truly, I thought I would have the mental wherewithal to write something meaningful and inspiring between our return home on Tuesday night and my deadline for today.
The stress of the hospital, the round the clock breathing treatments, the meds, the unceasing parade of people —doctors, nurses, therapists, nursing students, medical students, social workers, child life specialists—has all taken its toll on my boy's already finely balanced state. (Seriously, the only person we didn't see was the hospital chaplain!) He can't sleep unless I'm with him, he can't play unless I'm with him. I can't go to the bathroom...well, you get the idea.
I have lots of wonderful things to share from our experience; really, I do. It will just have to keep though. In the meantime, here's the beginning of the story (as told on my blog):