I'm learning how to be "surgical recovery mom" and honestly wishing I didn't have to deal with this again. But we will, I will.
As I was sitting in the hospital last week thinking about how this surgery was just the beginning and dreading the next few years in and out of the hospital, I recalled it was the third anniversary of my baby shower.
You know back then I thought I would be a different kind of parent. In hopeful anticipation I painted the nursery and picked matching accessories. I had it all planned. I was going to be a working mom. My plan consisted of being neatly dressed, on time and well rested. (Which means I was very off based, even for a "typical" mom.) I knew it would be rough.
Not in a million years.
Never, in the far recess of my brain, did it occur to me that my son, at almost three would not be able to eat or breathe on his own. Never, did it dawn on me, that he wouldn't hear or talk like a typical toddler. So happily hopeful was I, that it never occurred that his life would so heavily rely upon assistive medical technology.
Now, try as I might, I cannot imagine it any other way.
Now I'm just a different kind of parent.
I wrangle nurses in my spare time. I have doctors and hospitals on speed dial. I drink sweet tea by the gallon and sleep in 15 minute intervals. I'm a medical jargon speakin', feeding pump fixin' ninja type.
I'm the hopeful type.
Janis Marie is a full-time mom, freelance writer and blogger. Highly regarded and respected for her ‘tell it like it is’ approach; she created and maintains Sneak Peek at Me to chronicle her son’s life and complex medical journey.
Through her blog and affiliations, Janis works year-round to promote awareness and acceptance for those living with a rare disease diagnosis. She also writes for Vote 4 Hope, RARE blog, 5 Minutes for Special Needs, She Posts, Complex Child and Kidz.