The bracelet arrived in the mail, small and shiny. I put it on my son’s four-year-old wrist, fumbling with the clasp.
For a few days, we both were acutely aware of its presence. When I tried to put it on him in the morning, Moe would squirm. I’d curse under my breath as I struggled to take it off at bath time. His wrist was pink where he tried to bite it.
I thought of the kids who wore this type of medical jewelry when I was young. The kid with the peanut allergy. “You can’t even use the same spoon as the batch with the nuts” my mom would tell me, “or he could die.” The diabetic kid at camp—the one I pretended not to stare at whenever he took out his kit. My friend with epilepsy.
But Moe doesn’t have any of those things. In fact, Moe doesn’t have anything. My son wears a bracelet because of what he is, and what he might do.
Moe is autistic.
Moe doesn’t speak. He is unlikely to respond to his name. And he loves to run.
Like many kids on the autism spectrum, Moe attends a special education day class. My husband drops him off in the morning, and six hours later, I pick him up, chatting with the other moms as we wait for the teachers to bring out our kids.
Every day, I spy my little Moe, with his blue eyes and curly blond hair, walking hand in hand with one of the people I entrust with his education and his care. Every day they bring him back to me.
Except one day, when they didn’t.
I wasn’t worried at first. Moe’s class is often last to appear, as they are the smallest bunch, preschoolers slowed down by oversized backpacks and the frequent need to investigate some bug or crack in the sidewalk. But when the rest of the class had arrived and I signaled to his teacher, she made an excuse about a forgotten backpack. I saw her run back toward the classroom, and I knew.
They had lost my little boy.
For a few minutes, I waited there, the still center of a time lapse photo. The other parents left. Teachers went back to their classrooms. The bus came and went. And I stood there, waiting.
During those seven or eight minutes, I thought of Moe’s bracelet—the one that had finally become part of his morning routine, the one he still fiddled with but no longer fought against. Why had I put so much faith in that thin piece of metal? It couldn’t keep him safe from the creek running behind the school, or getting hit by a car, or lost in the sea of children leaving school.
I still don’t know who found Moe, who had slipped into an empty classroom. His teacher brought him to me like nothing had happened. I cried on the drive home.
Later that day, Moe was wild. He ran maniacally around the house, screeching and crashing into the walls. I dodged his attempts to bite me as I wrestled him to the floor for a diaper change. His nails, overgrown because he refused to let me cut them, scratched red marks into my neck.
I was bursting with rage. Why couldn’t Moe just control himself? Why did everything have to be so difficult?
And why wasn’t I strong enough to handle it with grace and good humor?
F. Scott Fitzgerald wrote that the test of a first-rate intelligence is the ability to hold two opposed ideas at the same time, yet still retain the ability to function. To be able to see, for example, that things are hopeless and yet be determined to make them otherwise.
By that definition, I must be a genius.
We parents of special needs kids face overwhelming joy and sadness, intense love and frustration, breathtaking wonder and fear—often in the course of a single day. We work tirelessly to help our kids succeed in the world, even when we have no idea what that success will look like. We are given so much reason to be hopeless, and yet, sometimes hope alone propels us forward.
And so it is that I send Moe out into the world every day, offering the only protection I can give him: hope, a hug, and a small silver bracelet.
Jen Bush also writes at her personal blog, Anybody Want A Peanut? This piece was written for, and selected as a semi-finalist in the 2011 Notes and Words essay contest.
This. This is the thing which still renders me utterly dumb and useless. The day I thought I lost Nik..lReplyDelete
Your words capture this all so painfully, so beautifully. It hurts. I've got to go order a bracelet now.
Beautifully expressed. Thank you.ReplyDelete
Boo was lost in her 2nd week of her new summer program. She just 'slipped' away from a 1-1 program. Thankfully she took a right out of her class. If she had taken a left she would've walked out of the unsecure front door. Boo is only 3 but with the development of an 18m old. She doesn't know her name and only can speak about 25-30 words. usually as labels.ReplyDelete
Unlike your experience, her teachers were so shocked that she went missing they told me the minute I walked into the door. Her aide was in tears telling me about it.
I still haven't ordered the bracelet. Partly because I don't know how I am going to keep it on her. Partly because I am still in denial and think it can never happen again.
mbt shoes clearance outlet
ray ban sunglasses
michael kors outlet
salvatore ferragamo belt
ed hardy clothing
nike roshe run
nike huarache ultra
yeezy boost 350 v2