Tomorrow marks the first day of a new chapter in our family life: it's the day I pick up the phone to remind my son's neuropsychologist, as she requested, to call her on the first day of June so that she can schedule E-Niner's relatively annual assessment.
What makes this assessment different from every other assessment she's done for him -- and the reason why tomorrow marks a new chapter in our life -- is because she will conduct this round of testing with the purpose of furthering the case for residential treatment for my son.
Prior to tomorrow, I've been doing a lot of hemming and hawing about maybe, possibly, considering placing my son in an environment out of our home. As of tomorrow, indirectly but substantially, the process begins hard and fast. It's another stake in the ground.
I've come to some sort of peace with the fact that my son needs round-the-clock psychological care, the kind that can't be provided in a home no matter how many aides we hire to help him out. I've come to the resolve that if my son were to live somewhere else indefinitely, all members in our family -- including our four year old -- will feel more like, well, individuals than cogs orbiting our son's psychological illness.
What I can't predict, though, is whether or not moving forward like this will break our nuclear family into shards so fine, far and wide that we won't be able to recover. At the same time, I can't predict that the status quo isn't going to do the same thing, either. It feels like our marriage is hanging in the balance. We've been flung to the rafters, and perhaps the only way down is to crash.
My husband doesn't want to place E-Niner in residential treatment. Though, all four of E-Niner's grandparents, his school teacher, the treatment team at his therapeutic school, the treatment team at his former therapeutic school, his psychiatrist, his counselor, the family social worker, his at-home aide, his pediatrician, and his own mother all believe E-Niner will get the care he needs in this setting. It feels like the whole world against my husband, and he's all sorts of pissed off.
I've been avoiding him, and vice versa for several weeks now. What I didn't realize is that for maybe perhaps the past few months, he was giving me the silent treatment. To not even register that your husband is giving you the silent treatment shows just how dysfunctional and lost we are. Now, I feel almost as if we're in some kind of western showdown; that we've stepped the requisite 20 paces from each other and have drawn our weapons. One false move, one flick of the wrist, and somebody fires like mad. In other words, things are tense.
Thing is, I don't see much relief easing up any time soon. In fact, tomorrow's phone call and later, things are simply going to get worse and worse. Will it come down to the day that a placement gives us an offer? Will my husband feel bullied into accepting the placement, and then decide to tear up our family afterwards? Will I ultimately follow my husband's desire not to place, squelching my own sense of what is absolutely right and necessary for E-Niner, and turn the tables on our marriage? Will it be me giving him the silent treatment for months on end? And then will our marriage finally dissolve? Is the marriage dissolving right now, right before my very eyes?
I'm taking everything daily as it comes. But as I look around and witness the possibilities, our path is looking mighty bleak right now. As the saying goes, something's gotta give.
Though what I'm struggling through may feel hard, I don't at all minimize the loss of loved ones that so many Americans have felt for their family members killed on duty. My heart not only goes out to all who grieve today and everyday, but to all the women and men whose sacrifice has given the rest of us a freer country.
Oh, how hard this must be. I send you peace and wisdom and strength to go through with what you need to go through. I don't have any answers nor any advice -- surely, relief will be had when whatever decision you make is made. I often think the waffling, the indecisive part of any huge transformation is the most difficult. I will say prayers that you and your husband will find strength together.ReplyDelete
Those are situations you can only pray for guidance on... and through prayer the right answer will come... that is how i cope... and it does not need to be loud or boastrus, it just has to be simple and sweet. Best Wishes.ReplyDelete
I'm sorry life is so messy right now. I hope that you and your husband will be able to come to a compromise and an acceptance. Prayers with you and yours, regardless of how things turn out.ReplyDelete
You have friends out here, hoping and waiting for things to sort out for you soon. No family should have to carry this kind of stress and anguish. I wish a safe place and happiness for all of you.ReplyDelete
God bless you all...never forget that there are people out here who love you and are pulling for you every minute of the day..hoping you all come out the other side safe, happy and at peace.ReplyDelete
I think you speak for so many in such situations. Sending you prayers.ReplyDelete
Your posts are always so honest and heartfelt which is why people can relate. I wish I had some magical solution for you, but of course I do not. You have my support and many many good wishes for peace within your family. I hope the meeting goes well.ReplyDelete
I am so sorry this is all so hard right now. I am glad to see you post on here, as I miss catching up on your actual blog, but I do understand the need for privacy :). I will keep your family in my prayers. Hopefully hubby comes around on his own, I do hope he gets to read this...it may help him see thigns differently. Take careReplyDelete
My son is currently in acute care and it is so very hard. I cannot imagine the pain of considering residential. My thoughts are with you!ReplyDelete
Holding you in prayers for strength, clarity and peace.ReplyDelete
You are facing impossible decisions. May you be gentle with yourself at this time.ReplyDelete
I've been away for awhile and was reminded to read via FB and the NYTimes article. I'm sorry about these tender tender times you're going through. And I was reminded about a radio archive I'd recently re-listened to:ReplyDelete
Thanks for sharing and my heart is with you.
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