Thursday, February 16, 2012

List

To Do Today

  • Put her out there
  • Keep her close
  • Orchestrate situations in which she can succeed
  • Sit back, hands off, see what she can do
  • Make annual appointments with multiple specialists per diagnosis guidelines
  • Let her be until and unless she appears to need medical attention
  • Schmooze the professionals and experts in her life
  • Screw the professionals, I am the expert
  • Advocate to affect systems change
  • Don’t rely on systems
  • Contact insurance about coverage for a new communication device
  • Research alternate funding as insurance is unlikely to cover a new device
  • Seek work for pay
  • Continue to work for other compelling reasons and no pay
  • Worry
  • Don’t worry
  • Trust others with her
  • Investigate,monitor, and record the actions of others in her life
  • Remember she is ‘special’ because she is different
  • Remember that she is just a regular kid
  • Respond to insensitive comments with a grace aimed at educating
  • Fling a zinger back when stupid things are said and done
  • Promote inclusive attitudes by taking risks and assuming inclusion
  • Don’t expect acknowledgement of any kind
  • Search for strategies to mitigate her challenges
  • Accept her as she is
  • Celebrate
  • Grieve
  • Participate in typical family life
  • Redefine my own family life
  • Let people in
  • Guard  privacy
  • Say yes
  • Say no
  • See what others have done, don’t reinvent the wheel
  • Pave a new path, do it my own way
  • Get involved in everything
  • Take time for myself
  • Ask for help
  • Don’t depend on others
  • Try to work my family into the typical flow of my community
  • Sign on to exclusive disability-related opportunities with those who “get it”
  • Campaign to change words referencing those with intellectual differences
  • Don’t let words get to me
  • Change everything
  • Change nothing
  • Push
  • Pull
  • Act
  • Wait
  • Do
  • Don't

To Do Tomorrow

  • Put her out there
  • Keep her close
  • Orchestrate situations in which she can succeed
  • Sit back,

                                hands off,

                                                       see

                                                                   what

                                                                                  she

                                                                                                 can

                                                                                                            do…

 

http://farmerjohncheeseandotherjoy.blogspot.com/

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