Thursday, October 27, 2011

PANDAS Resources

Pediatric Autoimmune Neurological Disorder Associated with Strep

I recently posted on my blog about my son's struggle with what we think is PANDAS, and my own struggle to keep up with it. The next day via email I received a very informative newsletter from pandasnetwork.org. If you have a child with PANDAS (or suspected PANDAS)  it is a valuable resource and I highly recommend subscribing. As I was with my daughter and ASD, I am blown away by the dedication of other parents and a few brave and committed doctors. 

I am in research mode, figuring out how best to help my sweet boy. 

Saving Sammy is one family's story about a boy who was severely affected by PANDAS and was brought out of his nightmare through the use of antibiotics.  

IVIG is one of the newest treatments for PANDAS and it is very expensive. The newsletter mentions a clinical trial taking place at Yale. If you are interested in it, the clinical trial is #

11-M-0058

 

 

 

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