How can families best care for themselves and their child? My daughter has multiple disabilities. Primarily we’re facing autism and kidney disease. But she has the “combined type” of autism which includes ADHD (Attention Deficit/Hyperactivity Disorder) and LD (Learning Disabilities). As her kidney function decreases, she has developed hyperparathyroidism (thyroid), hypertension (high blood pressure), hypercholesterolemia (high cholesterol), osteodystrophy (bone disease) etc. She also has spina bifida, scoliosis, and vision/hearing/dental problems.
Ok so now that you have the picture I’ll tell you how I deal and hopefully it’ll help some of you parents out there. The first thing I did when she was born was call every kidney disease organization listed in the Exceptional Parent Resource Guide. When we received the secondary diagnosis of autism when she was 7, I felt a little overwhelmed until I thought back to what I did before…then I called all the autism organizations in the EP Guide. Also, if your child has an uncommon condition like mine, you can call the National Organization of Rare Disorders.
Everyone deals with things differently, but I found out the more I knew about her condition, the less I felt helpless and hopeless. Once you know what options you have for treatment, you can make educated decisions about your child’s care. Families who have information are empowered. They don’t feel as stressed. They don’t feel like they’ve lost complete control of their children’s lives, but rather can partner with professionals in joint decision-making.
Sometimes though, families also need to talk to other parents. Besides Parent-to-Parent matching, I would also recommend support groups. There is actually a listing of all support groups nationally through the American Self Help Group Clearinghouse. There’s nothing like getting support and ideas from other families who’ve “been there.”
By getting information and support they need, families can take the best care of their children with special needs, as well as themselves.
Resources:
Exceptional Parent magazine call (800) E-PARENT for a free pocket guide
National Organization on Rare Disorders (800) 999-6673
Parent-to-Parent www.p2pusa.org (click on “view U.S. Map)
American Self Help Group Clearinghouse www.mentalhelp.net/selfhelp
شركات عزل مائي بالرياض
ReplyDeleteشركة تنظيف كنب بالرياض
شركة تنظيف غرب بالرياض
شركة تسليك مجاري شرق الرياض
شركة تسليك مجاري شمال الرياض
شركة تنظيف شمال الرياض
شركة تنظيف شرق الرياض
شركة الصفرات لتنظيف المنازل
شركة الصفرات لتنظيف الفلل
شركة الصفرات للتنظيف بالرياض
20151222dongdong
ReplyDeletechristian louboutin outlet
longchamp handbags
michael kors handbags
nike trainers
louis vuitton
kate spade
michael kors outlet
air max
cheap uggs
cheap toms
kate spade outlet
sac longchamp pliage
true religion outlet
michael kors outlet
cheap jordans
adidas gazelle
louis vuitton handbags
ghd
ralph lauren pas cher
sac longchamp
louis vuitton handbags
christian louboutin
michael kors outlet
air jordan 8
burberry outlet
coach outlet
ed hardy outlet
fake oakley sunglasses
nike blazer
cheap oakley sunglasses
toms outlet
michael kors handbags
true religion outlet
fitflops clearance
coach outlet
soccer jerseys
nike uk
coach canada outlet
ugg boots
canada gooses
2016-3-29 xiaozhengm
ReplyDeletenike air max
ray ban sunglasses
toms outlet
michael kors outlet
coach factory outlet
nike roshe run women
michael kors outlet,michael kors outlet online,michael kors outlet store,michael kors handbags,michael kors bags,michael kors watches,michael kors purses
michael kors outlet
kate spade handbags
louis vuitton outlet online
coach outlet
nike free runs
under armour outlet
calvin klein underwear
polo outlet
skechers shoes
prada outlet
louboutin
converse all star
ugg sale
air force 1
converse trainers
ed hardy outlet
pandora jewelry
coach outlet
ray ban outlet
ralph lauren pas cher
hollister sale
ray ban sunglasses
chi flat iron
michael kors outlet
true religion
ray ban sunglasses
burberry outlet
mizuno running shoes
oakley sunglasses
louis vuitton outlet
michael kors outlet
louboutin pas cher
burberry
Continue to Perbiki his blog to get a good blog !!
ReplyDeleteCara Mengobati Penyakit Gula Darah
Cara Mengobati Jamur Mulut
Cara Mengobati Telinga Berair
Pengobatan Epilepsi Dengan Bahan Alami
Cara Mengobati Rematik
Pengobatan Berbagai Macam Luka
Pengobatan Penyakit Kanker Payudara
balenciaga shoes
ReplyDeleteconverse outlet
yeezy boost
hermes belt
hermes
adidas yeezy
supreme clothing
kobe 9
off white hoodie
louboutin