Many
family caregivers of children with special needs struggle with trying to follow
holiday traditions given the other stressors in their lives. Here are some ways to make this time of the
year easier for families.
It doesn’t need to be the same
Family
caregivers need to realize that their children can participate in holiday
festivities but maybe in a different way than has been traditional. Like school, holiday activities can be
modified to accommodate the special needs of their child.
v If your child is on a
special diet for medical reasons, find out what is being served ahead of time
and bring a “safe” version so your child can still eat what everyone else is
having.
Photo www.nhs.uk
v If going to a
religious service, bring a comfort item like a stuffed animal or a quiet
activity like a coloring book to keep the child entertained.
Photo www.idahofederation.org
v Make sure ahead
of time that the venue (if it’s somewhere you’ve never been) is physically
accessible for people with disabilities
Photo
www.nlfolk.ccom
Ways to decrease “meltdowns”
Many
children with special needs become overwhelmed by sensory issues (sights,
sounds, even smells.) When children with
disabilities get to the point of “too much”, often they act out as a way to
communicate. There are things parents
can do to reduce sensory over-stimulation and avoid these behaviors.
Ø In a crowded
event, sit or stand on the outside of the crowd to reduce the feeling of being
overwhelmed. Even if the child can only
participate for a short time, it’s better than not at all.
Ø If your child is
sensitive to noise, bring headphones.
Ø If your child is
overly sensitive to light, bring sunglasses.
Ø If possible,
find a quiet corner away from the main activity so the child can calm down and
rejoin later.
Ø Some children
even get overwhelmed by opening too many gifts.
Open one or a few and save the rest to spread out over several days
instead of all at once.
Ø Social Stories
will help prepare the child about what to expect.
Source: www.setbc.org
Most
people will understand if the child with disabilities doesn’t act
perfectly. If extended family members
insist on traditions such as sitting at the table, parents can take turns
eating. If grandparents or others still don’t
understand, it may be necessary to make a separate visit with just the family
and grandparents in a smaller group to keep things are calmer. Family caregivers need to remember that
special needs don’t go away just because it’s the holidays!
Resources
Surviving
the Holidays with your Sanity Intact (One Place for Special Needs)
Enjoying
The Holiday Family Gathering With Your Special Needs Child (Delaware
Family-to-Family Health Information Center)
Reduce Holiday Stress with Proper Nutrition and Health Promotion
(National Center on Health, Physical Activity and Disability)
http://www.nchpad.org/252/1652/Reduce~Holiday~Stress~with~Proper~Nutrition~and~Health~Promotion
Social
Stories
For Caregivers
10 Tips for Caregivers During the Holidays
(AARP)
Spanish http://www.aarp.org/espanol/hogar-familia/prestar-cuidados/prestar-cuidado/info-11-2013/consejos-estres-cuidadores-amy-goyer.html?intcmp=AE-HOME-TOSPA-TOGL
Caregiving
and the holidays: from stress to success! (Family Caregiver Alliance)
Caregiver’s
Guide for Managing the Holidays (Caregiver Alliance-Boston)http://www.caregiveralliance.org/news/holidayguide.pdf
Remain Hopeful,
Lauren
Lauren Agoratus is a parent/advocate
who works for the Statewide Parent Advocacy Network and serves as the NJ
Coordinator for Family Voices (www.spanadvocacy.org), a national network that works to “keep families at the center
of children’s healthcare” at www.familyvoices.org
or
FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269. She also serves as NJ representative
supporting caregivers across the lifespan for the Caregiver Action Network
(formerly National Family Caregivers Association) in a volunteer capacity at http://caregiveraction.org/
or
FB www.facebook.com/CaregiverActionNetwork.
The tip about bringing a “safe” version of holiday food is FANTASTIC. I cannot say enough good things about this and the positivity surrounding it. The holidays can be a stressful time of year for anyone, but children tend to have their own stress, and take on the stress of adults as well. But with careful care and consideration, there is no reason this can’t and won’t be a joyous season for everyone!
ReplyDeleteThe tip about bringing a “safe” version of holiday food is FANTASTIC. I cannot say enough good things about this and the positivity surrounding it. The holidays can be a stressful time of year for anyone, but children tend to have their own stress, and take on the stress of adults as well. But with careful care and consideration, there is no reason this can’t and won’t be a joyous season for everyone!
ReplyDeleteThanks for your kind words! Yes I agree, the key is to minimize the stress on the children, making it easier for the whole family.
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Wonderfully said! It's important to plan ahead and set guidelines and expectations... As a teacher, these worked for me with my students as well. At the request of some of my parents, I wrote and illustrated a book about social skills. It's complete with activities to help reiterate the skills introduced. It's on Amazon and createspace.com and the title is Private Peter's Social Skills. While I didn't use board maker, I did illustrate for visual learners. I have worked in self-contained units for 10 years, that has given me insight. I totally agree with you on inclusion and being able to let them share in activities around this time of year, especially!
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