Wednesday, July 25, 2012

Preparing for the Worst

We are on vacation this week. It's sunny. I'm with my family and my sister's family and our parents. There's a pool and generous amounts of oysters and adult beverages.

It was also interrupted by a crisis. Which isn't really surprising, I guess. On the first full day of vacation I received a call from our care team for our kids. They were very alarmed to get our son's lab numbers from two days prior that revealed kidney rejection lab numbers.

I was in a store to buy flip flops when someone on the team called to tell me to come over to the hospital, that they'd be admitting my son for IV fluids and steroids to stop his body from rejecting his kidney.

The story details are here.

I am not surprised it happened, this beast is everywhere.

I kicked into gear and planned out the different scenarios on the way to the city we had to go to for labs and treatment an hour and a half away. I helped prepare my son for what might happen. I preplanned a getaway trip for him since he would miss our family vacation.

It's what I do. I stay 15 steps ahead of where I am because our life demands it. The planning helps me cope with what might come. It gives me a control I otherwise do not have in very many facets of my life.

I'm not surprised I planned out the scenarios but I was surprised about the depth of fear I had for my son rejecting his transplanted kidney, even though I have always known this is a very real possibility for both of my kids.

The fear caught me so off guard that I have lost my footing on the beast, or the footing I thought I had on the beast. And I am not handling that well.

- - - - - - - - - - - - - - -

Julia blogs at Kidneys and Eyes and started Support for Special Needs. She's hoping to raise activists and advocates in her two kids who've faced kidney transplants and need liver transplants one day, too. 


  1. Praying for you. I do not know much about kidney transplants, but I do know special needs. Preplanning all the possible scenarios helps to a certain extent, but there is a point when you have to know you are as prepared as you can be and turn your attention to enjoying the moment. I hope you enjoy the rest of your vacation.

  2. Thoughts and prayers being sent your way.

  3. This comment has been removed by the author.

  4. Roomba E5 is an upgraded version of Roomba E4 that is designed to work efficiently in large rooms. It comes with a larger cleaning area, and can cover a wider range of floors than the previous version. This robot vacuum cleaner is designed to clean any type of floor, including hardwood, carpet, tile, and laminate flooring. It can also work on stairs and small rooms with narrow entrances.The Roomba E5 has two wheels with four brushes, and a brushless motor that has more power and speed.

  5. In this blog you tell about your vacations and family trip. Everyone prepare for the worst time. This one is very helpful and useful. Now it's time to avail luxury airport transfer for more information.

  6. Discover actionable tips for creating robust contingency plans, both on a personal and community level. Uncover the importance of cultivating a resilient mindset that enables you to adapt to unexpected situations and bounce back stronger than ever. "Preparing for the Worst" is not just a blog—it's a roadmap for embracing life's uncertainties with confidence and courage.
    reckless driving lawyer emporia va