Friday, May 1, 2015

Help with Prescription Medicines for Families




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Family caregivers need to ensure that their children/family member’s medication is given at the right time, right dose, and right route (for example oral, injected, topical.)  Correct management of prescriptions is the biggest influence on preventing hospitalization. 

Tools for Family Caregivers
Organizing medicines can be challenging, especially for parents of children with complex needs.  There are online tools and apps. that list the name of the medicine, what it looks like, which condition it treats, and the time and amount given – all on the same page.  There is even a wallet size option so families can have the list on hand.  Lastly there is a checklist for filling a pill organizer.  There are also printable forms that parents can fill out if they prefer paper copies to apps. or being online.   See Resources at the end for some of these tools, including MyMedSchedule illustration below.
 
What Affects Access to Medications?
1.      Health Literacy
Research has shown that only 1 in 7 people can correctly read a prescription label.  Health literacy is the largest barrier to health care access.  See the diagram below on how to read a medication label.
 
                                                      Photo www.merckengage.com
 
2.      Medicaid
 
Ø  Limit to 30 days’ supply
Family caregivers can order Medicaid prescriptions up to 3 days in advance so if done monthly they won’t run out.  This would also help them have a little extra on hand for emergency preparedness (natural disasters.)
 
Ø  Medicaid as secondary insurance
Family caregivers may erroneously be told they must cover a copay.  Another reason to refill 3 days ahead gives parents time to appeal.  Medicaid should cover the rest after private, and sometimes Medicare, are billed. 
 
Ø  Pharmacy benefits and out-of-state authorization
If a child needs a non-formulary medication while hospitalized, parents may have to fill prescriptions outside of their home state.  However, families can contact their state’s Medicaid office to get reimbursed later.
 
Ø  Having both Medicaid/Medicare (“Dual Eligibles”)
Although there are SNPs (Special Needs Plans) for “dual eligibles”, it could be better to keep Medicaid and Medicare as separate plans due to the pharmacy benefits.    
 
3.      Specialty and/or Compounded Medications
Families need to make sure they know where to get prescriptions filled, if their insurance is accepted, and ask the hospital for an emergency supply.  Note:  some hospitals will forward a special formula to local chains if they agree to fill it. 
 
4.      Mailed medications/special storing
Some pharmacies will agree to have mailed medications delivered and held for families, which helps if a child has many emergency visits and a family may not be at home for the package.  If families can’t afford emergency generators for refrigerated medicines, parents can also ask a local fire department if they can store medicines there in a power outage. 
 
5.      Financial problems
Family caregivers shouldn’t try to make medication last longer by lowering a dose because it may not work as well or at all.  Help paying for medicines is available to families (see Resources.) 
 
 
Family caregivers can overcome obstacles to getting medications which will lessen stress on parents, and keep their child with a disability healthier.
 
Resources:
Organizers:
-MyMedSchedule (online/app.)
 
-My Medicine Record free printable form
 
 Help paying for prescriptions
-Partnership for Prescription Assistance
 
-Pfizer Pathways (includes non-Pfizer medications)
 
Medical Prescription Tips for families
 
 Statewide Parent Advocacy factsheet
 
Remain Hopeful,
 
Lauren  
 
Lauren Agoratus is a parent/advocate who works for the Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family Voices (www.spanadvocacy.org), a national network that works to “keep families at the center of children’s healthcare” at www.familyvoices.org or FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269.  She also serves as NJ representative supporting caregivers across the lifespan for the Caregiver Action Network (formerly National Family Caregivers Association) in a volunteer capacity at http://caregiveraction.org/ or FB www.facebook.com/CaregiverActionNetwork.

9 comments:

  1. "I am so happy to share this wonderful testimony about Dr Brave, my name is Mellisa Jefferson I am 34 years old, I live in Florida united states, I am happily married to Sowers Jefferson with three kids we got married in 2006 I am a banker but due to some certain family conditions I had to quit my job so I could have time for my family my husband works in a construction company not long ago around may 2015 my husband started to behave in a way i could not understand, i was very Confused by the way he treat me and the Kids. Later that month he did not come home again and he called me that he want a divorce, i asked him what have i Done wrong to deserve this from him, all he was saying is that he want a divorce That he hate me and do not want to see Me again in his life, i was mad and also Frustrated do not know what to do,i was Sick for more than 4 weeks because of the divorce. i love him so much he was everything to me without him my life is Incomplete. i told my sister and she told me to contact a spell caster, i never believed in all this spell casting of a thing. i just want to try if something will come out of it. i contacted Dr Brave for the return of my husband to me, he told me that my husband have Been taken by another woman, that she cast a spell on him that is why he hate me and also want us to divorce. then he told me that he have to cast a spell on him that will make him return to Me and the kids, he casted the spell and After 27hours my husband called me and He told me that i should forgive him, he Started to apologize on phone and said That he still loves me that he did not know what happen to him that he left me. it was the spell that Dr Brave on him that brought him back to me today, i and my family Are now happy again today. thank you Dr Brave for what you have done for me i would have been nothing Today if not for your great spell. i want You my friends who are passing through All this kind of love problem of getting Back their husband, wife , or ex boyfriend and girlfriend to contact him on this email: bravespellcaster@gmail.com , web site:http://enchantedscents.tripod.com/lovespell/ . and you will see that your problem will be solved Without any delay or effect cell number +2348072370762 Thanks for reading. ."

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  2. That’s really very good thing in your blog I like that!! Mary M

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  3. I am here to give testimony of how i got back my husband, we got married for over 9 years and we had two kids. thing were going well with us and we where always happy. until one day my husband started to behave in a way i could not understand, i was very confused by the way he treated me and the kids. later that month he did not come back home again and he called me that he want a divorce, i asked him what have i done wrong to deserve this from him, all he was saying is that he want a divorce that he hate me and do not want to see me again in his life, i was mad and also frustrated do not know what to do,i was sick for more than 2 weeks because of the divorce. i love him so much he was everything to me without him my life is incomplete. i told my sister and she told me to contact a spell caster, i never believe in all this spell casting of a thing. i just want to try if something will come out of it. i contacted traditional spell hospital for the return of my husband to me, they told me that my husband have been taken by another woman, that she cast a spell on him that is why he hate me and also want us to divorce. then they told me that they have to cast a spell on him that will make him return to me and the kids, they casted the spell and after 1 week my husband called me and he told me that i should forgive him, he started to apologize on phone and said that he still live me that he did not know what happen to him that he left me. it was the spell that he casted on him that make him come back to me. my family and i are now happy again. Thank you Dr. Aluta for what you have done for me i would have been nothing today if not for your great spell. i want you my friends who are passing through all this kind of love problem of getting back their husband, wife , or ex boyfriend and girlfriend to contact traditionalspellhospital@gmail.com and you will see that your problem will be solved without any delay. He cast spells for different purposes like
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  4. I'm very excited sharing this amazing testimony about how i save my marriage and get my husband back today, My name is Keys Miller,i live in Los Angeles, California, and I'm happily married to a lovely and caring husband ,with three kids. A very big problem occurred in my family seven months ago,between me and my husband. So terrible that he took the case to court for a divorce,he said that he never wanted to stay with me again,and that he didn't love me anymore.So he packed out of the house and made me and my children passed through severe pain. I tried all my possible means to get him back,after much begging,but all to no avail.and he confirmed it that he has made his decision,and he never wanted to see me again. So on one evening,as i was coming back from work,i met an old friend of mine who asked of my husband . So i explained every thing to him,so he told me that the only way i can get my husband back,is to visit a spell caster,because it has really worked for him too.So i never believed in spell,but i had no other choice,than to follow his advice. Then he gave me the email address of the spell caster whom he visited.{GREATOGUDUGU@GMAIL.COM}. So the next morning,i sent a mail to the address he gave to me,and the spell caster assured me that i will get my husband back the next day.What an amazing statement!! I never believed,so he spoke with me,and told me everything that i need to do. Then the next morning, So surprisingly, my husband who didn't call me for the past seven 9 months,gave me a call to inform me that he was coming back.So Amazing!! So that was how he came back that same day,with lots of love and joy,and he apologized for his mistake,and for the pain he caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster. So, i will advice you out there to kindly contact Dr Ogudugu if you have any problems,{GREATOGUDUGU@GMAIL.COM}. Thanks you Dr Ogudugu, i will always be testifying about your good work.

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