Sunday, June 1, 2014

What Family Caregivers of Children with Disabilities Need to Know about Wellness & Prevention




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Families of children with disabilities may be overwhelmed with multiple appointments to specialists.  It’s difficult to remember about wellness and preventive care but this is important to overall health.   

Screening
Parents are the experts regarding their children as they are with them 24/7.  It is often the family that first notices something is off.  The American Academy of Pediatrics has information on screening at http://www.healthychildren.org/English/ages-stages/Pages/default.aspx.  The Centers for Disease Control’s (CDC) project Act Early has checklists for parents at http://www.cdc.gov/ncbddd/actearly/concerned.html.  First Signs also has good information regarding concerns about a child at http://www.firstsigns.org/concerns/index.htm 

Immunizations
Vaccine preventable disease is an important component of wellness. The CDC has immunization schedules at http://www.cdc.gov/vaccines/schedules/index.html.  It is important to note that children with developmental disabilities or neurological disorders are at high risk for flu complications (see http://www.cdc.gov/flu/protect/neurologic-pediatric.htm.)

Dental Care
Oral health is essential for overall health.  Cavities can cause bacteria to spread to the bloodstream with serious complications.  Children with special needs may have difficulty with dental care due to poor motor skills or medications which affect their teeth.  Bright Futures has a Pocket Guide at http://www.mchoralhealth.org/pocket.html.  The AAP also has information for families at http://www.healthychildren.org/english/healthy-living/oral-health/Pages/default.aspx  or Spanish http://www.healthychildren.org/spanish/healthy-living/oral-health/paginas/default.aspx  Tips for families of children with special needs can be found from Autism Speaks at http://www.autismspeaks.org/family-services/tool-kits/dental-tool-kit and also from the Vanderbilt Kennedy Center at http://kc.vanderbilt.edu/kennedy_files/OralHealthTips.pdf.  For families without insurance, Donated Dental Services has free dental care at http://dentallifeline.org/our-state-programs/ and Smile for a Lifetime has free orthodontics at http://slf.memberclicks.net/zip-code-search
 
                                                          www.kidsafetystore.com
Hearing
Early detection of hearing loss results in better outcomes.  The CDC has information for families at http://www.cdc.gov/ncbddd/hearingloss/families.html.  There is an Early Hearing Detection and Intervention Program in each state found at http://www.infanthearing.org/states/index.html.  The U.S. Department of Education has a guide “Opening Doors: Technology and Communication Options for Children with Hearing Loss” at http://www2.ed.gov/about/offices/list/osers/products/opening_doors/index.html or Spanish http://www2.ed.gov/about/offices/list/osers/products/opening_doors/espanol.html.

 
Vision Care
There is Commission for the Blind or Visually Impaired in each state, usually found under the Department of Human Services.  There are also resources for families who do not have insurance such as New Eyes for the Needy at http://neweyesfortheneedy.org/apply-for-assistance/, One Sight (English/Spanish) at
 


Mental Health  
The National Alliance on Mental Illness has a Child & Adolescent Action Center at http://www.nami.org/Template.cfm?Section=Child_and_Adolescent_Action_Center&template=/ContentManagement/ContentDisplay.cfm&ContentID=21090.  They also have workshops and support for parents of children with challenging behaviors at http://www.nami.org/Template.cfm?Section=Your_Local_NAMI&Template=/CustomSource/AffiliateFinder.cfm .  The U.S. Department of Health also has the “Family Guide to Systems of Care for Children with Mental Health Needs (English & Spanish) at http://store.samhsa.gov/product/Family-Guide-to-Systems-of-Care-for-Children-With-Mental-Health-Needs-bilingual-English-Spanish-/SMA05-4054.



General Wellness 
General Information can be found in Family Matters:  Promoting Health & Wellness for Children with Special Health Care Needs Family Booklet at https://org2.democracyinaction.org/o/6739/images/family_matters_book.pdf or Spanish http://www.familyvoices.org/page?id=0005.  The CDC also has “People with Disabilities: Living Healthy” at http://www.cdc.gov/features/disabilities/.  Lastly, there is a Bright Futures Activity Book for children (English/Spanish) at http://brightfutures.aap.org/pdfs/BFActivityBook_L%200626.pdf?Site=nf.aap.org&WebKey=68530b27-2adb-43ae-9c87-2fa20cb86cae&url_keyword=Bright+Futures+Activity+Book. 
 
Families of children with special needs want the best care for their children, and this includes prevention and wellness.    The next blog will focus on physical activity and nutrition for children with special needs.
 
Additional Resources
Family Voices-Impact Project (Bright Futures for Families)-wellness/special needs
 
Maternal/Child Health Knowledge Paths (various topics)-family resources


Remain Hopeful, 

Lauren 

 

Lauren Agoratus is a parent/advocate who works for the Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family Voices (www.spanadvocacy.org), a national network that works to “keep families at the center of children’s healthcare” at www.familyvoices.org or FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269.  She also serves as NJ representative supporting caregivers across the lifespan for the Caregiver Action Network (formerly National Family Caregivers Association) in a volunteer capacity at http://caregiveraction.org/ or FB
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


 

6 comments:

  1. How To Stop A Divorce And Save Your Marriage?(Dr.Brave).

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  2. Dr.Brave help me to save my marriage today


    An amazing testimony on a spell caster who brought my wife back to me,my name is Mark Davis,i live in Maryland/USA,and I'm happily married to a lovely and caring wife,with two kids.A very big problem occurred in my family seven months ago,between me and my wife.so terrible that she took the case to court for a divorce.she said that she never wanted to stay with me again,and that she didn't love me anymore.So she packed out of my house and made me and my children passed through severe pain. I tried all my possible means to get her back,after much begging,but all to no avail.and she confirmed it that she has made her decision,and she never wanted to see me again.So on one evening,as i was coming back from work,i met an old friend of mine who asked of my wife.So i explained every thing to her,so she told me that the only way i can get my wife back,is to visit a spell caster,because it has really worked for her too.So i never believed in spell,but i had no other choice,than to follow her advice. Then she gave me the email address of the spell caster whom she visited.{bravespellcaster@gmail.com}So the next morning,i sent a mail to the address she gave to me,and the spell caster assured me that i will get my wife back the next day.What an amazing statement!! I never believed,so he spoke with me,and told me everything that i need to do. Then the next morning, So surprisingly, my wife who didn't call me for the past seven {3}months,gave me a call to inform me that she was coming back.So Amazing!! So that was how she came back that same day,with lots of love and joy,and she apologized for her mistake,and for the pain she caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster.So,i will advice you out there to kindly visit the same website http://bravespellcaster.yolasite.com,if you are in any condition like this,or you have any problem related to "bringing your ex back. So thanks to the bravespellcaster@gmail.com for bringing back my wife,and brought great joy to my family once again. {bravespellcaster@gmail.com} Thanks..

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