Wednesday, June 11, 2014

The Village People

No this post is not about the group nor am I going to burst forth into a really bad YMCA routine.

What it is about is my village.  And the people who make it work.  Monthly, weekly, daily, and sometimes minute by minute.

When you have a child with special needs it truly takes a village to rally round and hold down the fort.  When you have two children with special needs your village gets really really big.  I'm thinking of applying for my own state.

Even though the roads to my village are rarely paved and down right pothole-ish at times I have had people come and make it their home.  They are the unsung and unappreciated heroes who often get the thankless jobs and have to deal with me.  I'm not the easiest person at times.  I have little patience for the ridiculous, will ask endless questions to get the answers I seek, and will call and badger a person to death to get what my children need.  I also have a bit of a temper when having to deal with a person I know is capable of more and they refuse to give it their all.  Fun times, eh.

But despite that these people have stuck by me through it all.  When I started this journey I had broad assumptions of who would be there and who wouldn't.  Well let's just say I have been surprised time and time again.  I know that the road is rocky but most of the people who I thought would stick by me dropped our family and ran.  But I also met and made friends with some incredible people along the way.

So this post may start sounding a little Miss America-ish and if you want to stop reading right here and go watch TV that's OK.  You just won't be on my list.  Haha.  Just kidding.  Maybe.  Anyway here is a shout out to my village.

My family.  Seriously, if I don't place them at no. 1 I may be disowned.  But really they have been there for me.  My family has grown and changed in amazing ways this past year.  I have discovered a whole new branch on my family tree.  Very cool stuff!  But mom and the hubs are still number one!  Mom has been so awesome and checks in on me on a regular basis.  The kids adore her.
Shannon is a great guy.  He also adores his kids.  We may disagree on little things, like I prefer the toilet paper on the toilet paper spindle and he prefers to have me play where is the toilet paper today in the bathroom, but I can always count on him. 
I also couldn't have made it through the last year without Cary Lynn's nurse.  One of her favorite phrases is "It's all good."  She has kept me sane and made sure that Cary Lynn remains in one piece.  She is a nurse so she knows a lot about the medical side of it all and keeps it pretty real.  She is also as hard as heck to get a picture of so if she reads this she will be relieved to know that I couldn't find a current one.  I am going to have to start stalking her with a camera next week.  

My children's therapy team.  We have a really great team.  Most of my children's therapies happen at Brooke Road.  The therapists have their work cut out for them as my children can be uncooperative about 90 percent of the time (their asleep the other 10 percent).  But through it all they have pushed my kids and gotten amazing results.  I also handpicked Cary Lynn's vision therapist and we just love love love her!  She is the only early intervention person I have left and despite my strong dislike of how EI  is run where we are she is one of the reasons I have hope for the program.  

Children's Home Society and Noah's Children.  Two organizations that have had a big impact on our family. CHS facilitated the adoption of Cary Lynn but have really helped me advocate and get services for Marvin. They check in on me on a regular basis, help me wade through endless paperwork to get services, provided us with a family counselor to help Marvin with trauma issues, and introduced me to a rocking mama who adopted two children from them!  She has grown into an amazing friend and we are wading through the adoption journey together.  

Noah's has also been really helpful in connecting us to a community of people who are going through many of the same struggles of having medically complex children.  They visit, call, and have provided our children with music therapy.  They are also starting a pet therapy program and we are super excited to have visiting dogs.  The events they do for families are amazing and they are sending my son to camp this summer so he can just do something normal.  Something that other kids his age get to do.  When you live my life normal isn't a daily occurrence.  So letting him have time to breathe and be a little boy is a huge thing for us.  

Buddy Break and members of Trinity.  The special needs program is amazing but what blows my mind is that even though we don't attend there right now is that they still check in on me, involve our family, and just love on us.  We have a good church right now.  And lots of love from some of the folks at CVAG.  It is good to know our family is loved and cared about.  Plus many of the families at my last job who have brought me countless hospital meals and spared me from another night of Subway.  

They are last on the list but certainly not least.  My mom support group.  I was so lucky to find them.  They have been in the trenches and can change a g-tube blindfolded on burning coals.  They answer questions, calm fears, and most of all support each other.  I have seen lots of other groups henpeck and get ugly.  I have yet to see this group do that.  They support each other, kind words and encouragement are given freely.  When I have a bad day they offer support.  When I have a good day they celebrate with me. Because of them I have reached out towards others and come alongside of them on their journeys.  They help bring out the best in me.  

These people aren't everyone in my village but they are the heart of my village.  As I add people to it and become part of other villages my life and my children's lives become better for it.  So thank you for all that you guys do.  You have made a difference in our lives!  



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Amy Fields is a mother of two special needs children.  You can follow her on her blog, Many Kinds of Families.  

9 comments:

  1. How To Stop A Divorce And Save Your Marriage?(Dr.Brave).

    Hello to every one out here, am here to share the unexpected miracle that happened to me three days ago, My name is Jeffrey Dowling,i live in TEXAS,USA.and I`m happily married to a lovely and caring wife,with two kids A very big problem occurred in my family seven months ago,between me and my wife so terrible that she took the case to court for a divorce she said that she never wanted to stay with me again,and that she did not love me anymore So she packed out of my house and made me and my children passed through severe pain. I tried all my possible means to get her back,after much begging,but all to no avail and she confirmed it that she has made her decision,and she never wanted to see me again. So on one evening,as i was coming back from work,i met an old friend of mine who asked of my wife So i explained every thing to her,so she told me that the only way i can get my wife back,is to visit a spell caster,because it has really worked for her too So i never believed in spell,but i had no other choice,than to follow her advice. Then she gave me the email address of the spell caster whom she visited.(bravespellcaster@gmail.com}, So the next morning,i sent a mail to the address she gave to me,and the spell caster assured me that i will get my wife back the next day what an amazing statement!! I never believed,so he spoke with me,and told me everything that i need to do. Then the next morning, So surprisingly, my wife who did not call me for the past seven {7}months,gave me a call to inform me that she was coming back So Amazing!! So that was how she came back that same day,with lots of love and joy,and she apologized for her mistake,and for the pain she caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster . So, was now stronger than how it were before,by the help of a spell caster . So, i will advice you out there to kindly visit the same website http://bravespellcaster.yolasite.com,if you are in any condition like this,or you have any problem related to "bringing your ex back. So thanks to Dr Brave for bringing back my wife,and brought great joy to my family once again.{bravespellcaster@gmail.com} , Thanks.

    ReplyDelete
    Replies
    1. I'm CLIFFORD MARY by name I have a few testimony to share with you all about myself, I was in a relationship with this guy and for 3years and we were about getting married when we both have misunderstanding with each other and he ask me for a divorce and we both agreed and after 4months I head that he was having an affair with one of my closest friend and I was very upset and worried so a friend of my advice me and told me if I still love my ex and if I really want to have him back so I told her yes, and she ask me to contact Dr. ALLI the spell caster and I did although I never believe on spell so he gave me something when he was casting the spell and ask me to say my wishes on it and after the casting of the spell a receive a phone call from my ex and was ask me at which I did and now we are back together again I'm so happy and I wish not to ever have this mistake again in my life. I will also advice anyone with this kind of issue to contact him for help he is really nice on phone and always there to answer you question giving you the good advice that you need. his email is ALLISPELLHELP@GMAIL.COM or you call +2348149158514

      Delete
  2. Dr.Brave help me to save my marriage today


    An amazing testimony on a spell caster who brought my wife back to me,my name is Mark Davis,i live in Maryland/USA,and I'm happily married to a lovely and caring wife,with two kids.A very big problem occurred in my family seven months ago,between me and my wife.so terrible that she took the case to court for a divorce.she said that she never wanted to stay with me again,and that she didn't love me anymore.So she packed out of my house and made me and my children passed through severe pain. I tried all my possible means to get her back,after much begging,but all to no avail.and she confirmed it that she has made her decision,and she never wanted to see me again.So on one evening,as i was coming back from work,i met an old friend of mine who asked of my wife.So i explained every thing to her,so she told me that the only way i can get my wife back,is to visit a spell caster,because it has really worked for her too.So i never believed in spell,but i had no other choice,than to follow her advice. Then she gave me the email address of the spell caster whom she visited.{bravespellcaster@gmail.com}So the next morning,i sent a mail to the address she gave to me,and the spell caster assured me that i will get my wife back the next day.What an amazing statement!! I never believed,so he spoke with me,and told me everything that i need to do. Then the next morning, So surprisingly, my wife who didn't call me for the past seven {3}months,gave me a call to inform me that she was coming back.So Amazing!! So that was how she came back that same day,with lots of love and joy,and she apologized for her mistake,and for the pain she caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster.So,i will advice you out there to kindly visit the same website http://bravespellcaster.yolasite.com,if you are in any condition like this,or you have any problem related to "bringing your ex back. So thanks to the bravespellcaster@gmail.com for bringing back my wife,and brought great joy to my family once again. {bravespellcaster@gmail.com} Thanks..

    ReplyDelete
  3. HOW DR CUBA HELPED ME GET MY EX BACK
    I AM DICKSON, my wife dumped me 9(nine) months ago after I accused her of seeing another man. I wanted her back in my life but she refused to have any contact with me. she changed her mobile number, blocked me from sending her mails and even on Facebook. I was so confused and lost concentration that made me lose my job, it was disastrous. I kept seeing on several blogs how a spell caster keeps helping people get their ex back and I contacted this spell caster called DR CUBA for help, he assured me in 48hours that my ex will return to me, and to my greatest surprise my ex called me for the first time since we broke up. I am so happy that my love is back again, we are now happier than ever and I have gotten a job far better than my previous one, once again thank you DR CUBA TEMPLE , you are truly gifted and powerful. Email this wonderful man on drcubatemple@gmail.com. He is the only answer to your problems. He can be of great help and I will not stop publishing his name for the good work he did for me . again his email address is drcubatemple@gmail.com or call Doctor on +2347038965900

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  4. I USED TO HAVE HIV,,,AND I WORK WITH THE U.S ARMY......I LOOKED FOR CURE ALMOST ROUND THE WORLD,NOT UNTIL I CONTACTED A GREAT indianmedicationcenter@gmail.com,I NARRATED MY PREDICAMENT TO HIM,I WAS SHOCKED HE SAID''NO CAUSE FOR ALARM'''I SEND HIM MY PHOTO,,,,HE SAID HE WILL NEED TO BUY SOME ITEMS,AND I PAID FOR IT...AFTER THREE DAYS HE TOLD ME TO GO FOR TEST AGAIN,...... MY FRIENDS YOU WON'T BELIEVE IT WAS NEGATIVE....NOW I'M SOUND AND HEALTHY STILL WORKING WITH THE U.S ARMY . I BELIEVE HE CAN CURE ANY TYPE OF SICKNESS HIS EMAIL ADDRESS IS: indianmedicationcenter@gmail.com

    ReplyDelete
  5. I'm CLIFFORD MARY by name I have a few testimony to share with you all about myself, I was in a relationship with this guy and for 3years and we were about getting married when we both have misunderstanding with each other and he ask me for a divorce and we both agreed and after 4months I head that he was having an affair with one of my closest friend and I was very upset and worried so a friend of my advice me and told me if I still love my ex and if I really want to have him back so I told her yes, and she ask me to contact Dr. ALLI the spell caster and I did although I never believe on spell so he gave me something when he was casting the spell and ask me to say my wishes on it and after the casting of the spell a receive a phone call from my ex and was ask me at which I did and now we are back together again I'm so happy and I wish not to ever have this mistake again in my life. I will also advice anyone with this kind of issue to contact him for help he is really nice on phone and always there to answer you question giving you the good advice that you need. his email is ALLISPELLHELP@GMAIL.COM or you call +2348149158514

    ReplyDelete
  6. I WANT MY EX HUSBAND IS BACK

    Thanks God I found you Dr Love by helping getting my Ex-husband back because I dont believe i can remarried Him again after divorced him in 2011 but ever since the divorced am still deeply in love with my ex husband Christopher ,I really do love him very much with my heart . We have got together in 2008 and I divorced him in 2011 ever since then I have been trying to get him back while reading Prayer Books, The top relationship guide books Until Sunday that i surface on Google to seek Advice On how i can get my ex Husband back after divorced him 2yrs ago and i cant stop thinking of him and loved him then Google Recommend me to Contact Dr Love spell caster Email address drlovespellcastersolution@gmail drlovesolution@yahoo.com.com Tel +2348038096203 , i did contact Dr Love on the same day which him Assure me that i would have my Ex husband back within 24hrs , i dont believe at first that Love spell work but it Come to Reality to me on the Next day when i saw my EX husband knocking my Door in the Morning and say he want to talk something serious with me Immediately he Kneel Down and give me ring that he want to marry me again

    Thanks Dr love for helping me get my Lover back and put smile on my face forever .
    EMMER

    ReplyDelete
  7. My name is Daniela am from USA my partner and I have been trying to get a baby for over two years then, We were going to a fertility clinic for about 5 months and my ex lover was confused and angry with me so he thought i was a barren woman so he parked out and left me alone, six months later before somebody told us to contact this spell caster who is so powerful, i contacted him at this nogemaspelltemple@gmail.com for him to help us, then i told him my problem, he told us that i will either conceive soon, but after two years of trying i was at a point where i was willing to try anything. And I'm glad i came to Nogema. Because his pregnancy spell cast put me at ease, now i missed my month flow and my medical result shows that i was pregnant, as soon as my husband heard the great news he came back fast and started begging in tears and now am living happy with my husband and my pretty daughter, and I honestly believe him, and his gods really helped me as well, I am thankful for all he has done. contact him via email: nogemaspelltemple@gmail.com if you are searching for any help to problems like these:

    (1)If you want your ex back.
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    (5)If you want a child.
    (6)You want to be rich.
    (7)You want to tie your husband/wife to be yours forever.
    (8)If you need financial assistance.
    (9)Herbal care

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  8. Falling in love with derrick was the sweetest thing to ever happen to me. i meet him when i was 23 and we had been together for 5 years so when he left me it was like me whole life was ending i looked for solution every but could not find one i even almost killed my self when i found out that he already started seeing someone else.
    I confronted this particular lady on one occasion and told her derrick is mine and i will do anything to have him back even offered her money but she refused funny enough she is 10 years older than derrick so i suspected a foul play and cant just imagine myself loosing the love of my life to an older woman so i continue the search for solution.
    It was about 8 month since derrick stopped talking to me and one day a saw a post online about a spell caster (DR BRIGHT) had no option i had to try and see if it would work which i did behold at after 48hour my man showed up at my house with flower and wanted to start apologizing i just told him to forget and told him i am happy to have him back because DR BRIGHT already told me he was under a spell.
    I am happy to say my man has been with me now for 6 month and we have been living happily and am also 3 months pregnant now.
    Once again thank you sir for making me happy and also here are is contact because i know there are many people like me especially women who need help fixing their relationship Email or call brightlovetemple@gmail.com, or +2348111957679
    Thank you all.
    MONICA
    VIRGINIA,USA

    ReplyDelete