Friday, October 11, 2013

Self-Made Advocate/Activist

Earlier this week, I showed my Health Communication undergraduate course the documentary film How to Survive a Plague. It's a powerful film about HIV-positive men and the various self-made activists of the late 1980s and early 90s in the US who insisted that the nation pay attention to AIDS as a national health crisis.  It's about self-advocacy, alliances, powerful rhetoric, iconic staged protests and self-made scientists.  My students were mostly stunned to learn of the history of HIV as a health issue prior to the development of drug therapies that slowed the progression of the disease in 1994.  I was working in New Hampshire in 1992 at an AIDS service organization and trying to help the community deal with many gay men coming home from Boston and New York to die. Needless to say, it was heady times. Watching How to Survive a Plague
brought that time back to me, when I was much younger and much more hopeful that with a little bit of activism, the world really would be a much nicer place during my lifetime. I imagined advocacy and activism as something one did and achieved--as if on a linear trajectory. Boom. Done. HIV/AIDS cured. Discrimination ended. Onto the next project. But humans don't behave that way, and as history shows us, we repeat our mistakes again and again. We treat new diseases as plagues when we don't understand them. Equality is never achieved entirely, it's something struggled for and sometimes it is won for a little bit. 

But more importantly, what this documentary got me thinking about is how for years, I have been an advocate for patients and people with disabilities and those living on the margins.  Maybe that is what people mean when they say my daughter is lucky to have me as a parent.  I was already primed to fight like hell for her.  I was not afraid to ask questions and I have no illusions that there is an Oz living behind the curtain fabricating some conspiracy to keep gene therapies from curing my daughter's rare disease.  I am angry that while people are dying of rare diseases and infections, people's ideologies can literally put research and science to a halt.

According to the Global Genes Project:
"One area where the devastating effects of the government shutdown aren’t getting much public attention is basic biomedical research. What’s happening to the thousands of researchers and billions of dollars dedicated to understanding human disease and development? This reporter talked to a government biomedical scientist about the shutdown’s effect:
 http://www.wired.com/wiredscience/2013/10/government-shutdown-affects-biomedical-research/

The more things change, the more they stay the same.  And somehow, I keep on advocating, and trying to be an activist in my little ways. Keep on fighting the good fight people!   

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When Kirsten isn’t teaching Health Communication at the State University of New York, she tries to be a good advocate for the good of humanity, the environment and all living creatures, but spends a lot of time just craving a good cocktail.  She is also the mother of two awesome seven year old girls and she loves living in Vermont.

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  97. MP Board 10th Model Question Paper 2021 has been Published for All Subjects of Hindi, English Medium Published by MPBSE By Practicing the Blueprint Students can do an Analysis of their Time Management and Accordingly they can Develop a habit of time Management,
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  98. Important Question Paper 2022
    Assam 12th Model Paper 2022 the Board Of Secondary Education, Assam SEBA Board will Give AHSEC HS Blueprint 2022 Before the Assessment Date. The Assam Class 12th Important Question Paper 2022 can be Downloaded by Entering Understudy’s Data Like Candidate Assam Board 12th Exam Blueprint Download 2022 Exam Pattern From Their School or Study Focus. The Understudies won’t Got Their SEBA Assam HS Class XII Previous Paper Full Details at This Public Assessment, Secondary School Certificate HS will Be Sorted out by Directorate of Government Examination Assam SEBA Board the Assam HS Important Questions 2022 Pdf Will be HS Public Examination of Assam SEBA Board is Led Constantly of March and April 2022,
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  99. Central Board of Secondary Education (CBSE) is Going to Conduct the 12th Class Public Examination 2022 under Ministry of Communications, Government of India is a National Level Board of Education in India for Public and Private Collages, Controlled and Managed by Union Government of India, CBSE 12th Class Date Sheet 2022, CBSE 12th Class Important Questions Paper 2022 Download Available in the Subjects of Additional Subjects Mathematics, Physics, Chemistry, Biology, English, Hindi, Accountancy, Business Studies, Economics, Political Science, Physical Education etc, This Website will Give CBSE 12th Model Paper 2022, are a Helpful Resource for Students, Going through the Exam Analysis will Help Students in Evaluating their Performance.
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  100. Bihar Board 12th Model Paper 2022 BSEB is Conducted to Intermediate (12th class) Examination in Coming Soon Responsible for Bihar School Examination Board (BSEB) It is Provide Bihar Board 12th Model 2022 students we can Prepare Successfully than get better results and good rank – marks Bihar Board 12th Blueprint 2022 Learning Should not stop fortunately, many Education Boards came forward to give their Previous Year Question Paper free of cost for those who are interested students can download BSEB Intermediate Question Paper 2022 for your learning Directorate of Government Examinations is an independent body functioning from Bihar State Capital. Bihar Inter Public Exam starting Date can Download BSEB 12th Important Question Paper 2022 at Official Website Bihar Board Announced Intermediate Results and Bihar Board 12th Previous Question Paper 2022 Every Year Conducted BSEB 12th Annul Examination Students can Prentices the Model Paper 2022
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  101. 12th Blueprint 2022
    Bihar Board 12th Model Paper 2022 BSEB is Conducted to Intermediate (12th class) Examination in Coming Soon Responsible for Bihar School Examination Board (BSEB) It is Provide Bihar Board 12th Model 2022 students we can Prepare Successfully than get better results and good rank – marks Bihar Board 12th Blueprint 2022 Learning Should not stop fortunately, many Education Boards came forward to give their Previous Year Question Paper free of cost for those who are interested students can download BSEB Intermediate Question Paper 2022 for your learning Directorate of Government Examinations is an independent body functioning from Bihar State Capital. Bihar Inter Public Exam starting Date can Download BSEB 12th Important Question Paper 2022 at Official Website Bihar Board Announced Intermediate Results and Bihar Board 12th Previous Question Paper 2022 Every Year Conducted BSEB 12th Annul Examination Students can Prentices the Model Paper 2022

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  102. 10th Blueprint 2022
    BSEB Bihar School Education Board will Soon Declared the Much Awaited Class 10 Results. The Class 10 Exams Happened in the State in the First Week of March This Year 2022 Bihar School Examination Board BSEB Matric as well as the Intermediate BSEB 12th Exam in The State. BSEB Also has A Regional Office Located in the State Capital Of Patna. At Present, There is About Approximately 1407 Affiliated Schools Spread Across the State Of Bihar Board. As Per the Information From the Bihar Board Authority They Were Planning to Release the Results in the Month Of The June for This Year. It Goes Without Saying That Every Year A Large Number of Candidates Participating in These Examinations 2022, Bihar Board 10th Schedule, Previous Question Papers, Exam Tips Bihar Board Matric or 10th Class new Syllabus, Model Previous Year Question Papers, Study Materials, Exam Tips for Preparation.

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