Wednesday, March 25, 2020

The Life I Never Wanted You to Live

A season of loneliness and isolation is when the caterpillar gets it's wings.  Remember that the next time you feel alone.  Mandy Hale


Well I am pretty sure everyone's world has been shaken.  Over the past week I have seen every reaction from people going to underground bunkers to people out licking street lamps to prove we are all overreacting.  (Yes it was gross, no I don't think I will understand people as long as I live.)


Understand that this isn't what I wanted for humanity.  What many of you have had to live is my life.  A choice we made willingly without fully understanding the whole package when we took on this little one eight years ago. 



When I sat weeping in the hospital three days after she came home and we almost lost her as quickly as we got her I was told she was fragile.  Like spun glass, a knock of the shelf of life could kill her.  Even though her will is strong her body is weak.  She needed to be protected at all costs.  I vowed if she made it home I would do whatever it took.  She did and I kept that vow. 



At first it was hard.  It was hard to explain to family that even if you had "been on tamiflu" for a few days you were still putting my daughter's life at risk.  Family gatherings had to be short and small.  Outings had to be measured in pros verses risks.  Often Marvin and Shannon would go to events while I stayed behind with Cary Lynn.



After a time social isolation became our norm.  I stopped caring and worrying so much about what others thought or felt about it.  It was right for our family and my daughter grew and thrived.  It would (and still does) get lonely at times, but I have embraced what needs to be done and never regretted the choice I made. 



But now many of you have to live this life too.  Some of you are angry, some are scared, and some are probably hunting for a street lamp to lick. It's a topsy turvy time and the world has gotten a lot scarier. 



This is not what I wished on you.  My isolation was chosen.  Yours was forced.  There is a world of difference in this.  I am sorry that you have to do this.  I am sorry that you have to live my life for this season.  It's not an easy life to have thrust on you.  To be an observer and not an active participant in life. 



But the good news for you is that this is only for a small season.  This will come to an end.  The isolation, worry, and loneliness will end.  I am hoping that it will end soon.  That you can go back to work, school, movies, Disney, and large gatherings. 



When you do go back, remember me and many other parents of medically fragile children.  What will end for you we will willingly continue.  I will celebrate with you as you go about your lives but I am hoping that you will remember in the back of your mind that for some of us, this season will continue. 



I don't say this to make you feel sorry for us.  I am NOT sorry for our choice.  I only hope you will have better understanding of why we say no to get togethers, social events and why it's important to keep our kids safe from germs that may be a simple cold for you but lethal to us and cut us some slack.  Our daughter matters.  Her health matters.  So does yours.  Stay safe and we will all get through this together. 





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Amy Fields is a mom, advocate and always looking for missing socks.  You can find her on her blog  https://manykindsoffams.blogspot.com/

9 comments:

  1. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

    infinitylovespell@gmail.com or infinitylovespell@yahoo.com

    WhatsApp +2348118829899

    Blog http://infinitylovespell1.blogspot.com

    ReplyDelete
    Replies
    1. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

      infinitylovespell@gmail.com or infinitylovespell@yahoo.com

      WhatsApp +2348118829899

      Blog http://infinitylovespell1.blogspot.com






      My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

      infinitylovespell@gmail.com or infinitylovespell@yahoo.com

      WhatsApp +2348118829899

      Blog http://infinitylovespell1.blogspot.com







      My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

      infinitylovespell@gmail.com or infinitylovespell@yahoo.com

      WhatsApp +2348118829899

      Blog http://infinitylovespell1.blogspot.com

      Delete
    2. Greetings to every one that is reading this testimony. I had been rejected by my husband after five(5) years of marriage just because another woman had cast a spell on him and he left me with 2 kids to suffer. One day when i was reading through the web, i saw a post on how he help a woman to get back her husband and i gave him a chance he told me that my husband is under spell, he said that he will help me and after 7 days that i will have my husband back. i believed he and today i am glad to let you all know that this spell caster has the power to bring lovers back now my husband is back with after 7 days . he also gave me a financial magic ring to boost my business and removed bad luck. i am now happy with my husband. Thanks you Dr. love please contact him at (lovespelldoctor0@gmail.com)

      Delete
    3. DO YOU NEED A GOOD SPELL CASTER TO BRING BACK YOUR LOST LOVE EMAIL: LOVESPELLDOCTOR0@GMAIL.COM FOR HELP I have been in relationship with my boyfriend for 2 year now and we were planning to get married soon and all of a sudden he left me for another girl, i really love this guy and never can imagine my life without him. I further tried all my best to get him back but all my effort to get him back in my life did not work out. It was on this faithful day, i came across some comments on a website about this great spell caster called Dr love so many persons claimed that he help them to renew their relationship and bring their ex back, i had to contact him because he was my last hope. I contacted him through his email and he assured me that in two days time my boyfriend is going to leave the other girl and come back to me and it was a very great surprise to see my boyfriend coming back to me after two days. I am so very happy today that he came back to me and i achieved this with the help of Dr love and i advice if you need his help too email him direct at (lovespelldoctor0@gmail com)check blog: https://doctorlovespell0.blogspot.com/

      Delete
  2. Greetings to every one that is reading this testimony. I had been rejected by my husband after five(5) years of marriage just because another woman had cast a spell on him and he left me with 2 kids to suffer. One day when i was reading through the web, i saw a post on how he help a woman to get back her husband and i gave him a chance he told me that my husband is under spell, he said that he will help me and after 7 days that i will have my husband back. i believed he and today i am glad to let you all know that this spell caster has the power to bring lovers back now my husband is back with after 7 days . he also gave me a financial magic ring to boost my business and removed bad luck. i am now happy with my husband. Thanks you Dr. love please contact him at (lovespelldoctor0@gmail.com)

    ReplyDelete
  3. PROFESSIONAL SPELL CASTER WHO CAN HELP YOU WITH LOVE-SPELL TO GET YOUR EX LOVER BACK URGENTLY AFTER BREAKUP/DIVORCE EVEN IF YOUR SITUATION SEEMS HOPELESS! CONTACT: INFINITYLOVESPELL@GMAIL.COM IS CERTAINLY THE BEST SPELL CASTER ONLINE AND HIS RESULT IS 100% GUARANTEE..
     
    After 3 Years in a relationship with my Boyfriend, my Boyfriend started going out with other girls and showing me cold love, on several occasions he threatens to broke-up with me if I dare question him about his affair with other girls, I was totally devastated and confused until an old friend of mine told me about a spell caster on the internet DR GREAT who help people with their relationship and marriage problem by the powers of love Spells, At first I doubted If such thing ever exists but decided to give it a try, When I contact him, he told me everything I needed to do and I did and he helped me cast a Love Spell and within 28Hours my boyfriend came back to me and started apologizing, now he has stopped going out with girls and he is with me for good and for real. Contact this Great spell Caster for your relationship or marriage problem. 
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    CALL/WHATSAPP: +2348118829899

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    BLOG http://infinitylovespell1.blogspot.com

    ReplyDelete
  4. 24 HOURS LOVE SPELL CASTER 2020 


     I feel very happy to share my great and wonderful testimony with everyone on this platform..: I was married for 7 years to my husband and all of a sudden another woman came into the picture he started hating me and he was abusive and all because i never bear him a child. but i still loved him with all my heart and wanted him at all cost.... He filed for divorce and my whole life was turning apart and i didn't know what to do, he moved out of the house and abandoned me all alone,one day a very close friend of mine told me about trying spiritual means to get my husband back,so i went online to search and i came across so many spell caster who only wasted my time and took a lot of money from me,but i went back to her and told her that spiritual way has only taking my money and not yielding anything, and she introduced me to a spell caster, Dr gbojie, so i decided to try it. although i didn't believe in all those things because of what i have gone through lately, i contacted Dr gbojie  and he  explain all my problems to him and he told me that i shouldn't worry that when he cast the spell on me and my husband that my husband is going to run back to me and that within 2 weeks am going to get pregnant,so i did the little he ask me to do and behold it all work out,my husband run back to me and right now we have Twins Girl and a boy,so all thanks to Dr gbojie  you're indeed a great spell caster, in case anyone needs help here,  whatsapp him now +2349066410185 or email him : gbojiespiritualtemple@gmail.com 
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    ReplyDelete
  5. DO YOU NEED A GOOD SPELL CASTER TO BRING BACK YOUR LOST LOVE EMAIL: LOVESPELLDOCTOR0@GMAIL.COM FOR HELP I have been in relationship with my boyfriend for 2 year now and we were planning to get married soon and all of a sudden he left me for another girl, i really love this guy and never can imagine my life without him. I further tried all my best to get him back but all my effort to get him back in my life did not work out. It was on this faithful day, i came across some comments on a website about this great spell caster called Dr love so many persons claimed that he help them to renew their relationship and bring their ex back, i had to contact him because he was my last hope. I contacted him through his email and he assured me that in two days time my boyfriend is going to leave the other girl and come back to me and it was a very great surprise to see my boyfriend coming back to me after two days. I am so very happy today that he came back to me and i achieved this with the help of Dr love and i advice if you need his help too email him direct at (lovespelldoctor0@gmail com)check blog: https://doctorlovespell0.blogspot.com/

    ReplyDelete
  6. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

    infinitylovespell@gmail.com or infinitylovespell@yahoo.com

    WhatsApp +2348118829899

    Blog http://infinitylovespell1.blogspot.com

    ReplyDelete