Sunday, May 1, 2016

When Family Caregivers Need Help Navigating the Systems Helping Their Child




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When trying to get services for their children with special needs, family caregivers may run into roadblocks.  There are organizations that can help for free, but sometimes a paid advocate or even a lawyer is needed. 
 
 
When or why would family caregivers need help?
 
There are various systems that parents have to navigate, including education, healthcare, and family support.  Sometimes all it takes is a phone call to an organization to find out what the system’s responsibilities are and what their child’s rights are.  Basic advocacy can be done by keeping good notes and documenting everything.  Sometimes, families need to send a letter confirming a conversation because otherwise there’s no proof of what was said.  Other times parents may need to send documents by certified/return receipt mail to prove it was received. 
 
Education
 
Sometimes parents end up disagreeing with their school district on instructional services, related services like therapies, or placement, from inclusion to resource room, a self-contained class or even out of district school.  There are Parent Training and Information Centers in every state that can offer free technical assistance/parent advising to families (see Resources for links below.)  If parents need more help, they can reach out to their state Protection and Advocacy agency.  Paid advocates and lawyers can be found through the Council of Parent Attorneys and Advocates. 
 
Health Care
 
Other times families may be struggling with getting medical equipment or other health care from their insurance company (whether it’s private or through Medicaid.)  Or perhaps they’re trying to apply for SSI (Supplemental Security Income.) Or maybe their child just got a new diagnosis.  There are Family Voices State Affiliates and Family-to-Family Health Information Centers in every state that offer free help to parents.  If the issue is still unresolved, the next step could be to contact free legal help from Disability Rights in each state (sometimes call Protection and Advocacy.) 
 
 
 
 
Family Support
 
Lastly some parents are dealing with state offices based on their child’s disability.  Sometimes all they need is to talk to another trained volunteer of a child with the same condition and these can be found through Parent-to-Parent.  In every state, there is also a Governor’s Council on Developmental Disability.  Lastly, for families going through transition to adult life, Centers for Independent Living can help maximize their child’s potential.  For free legal help if needed, Disability Rights in each state would help with these family support systems as well.      
 
 
 
Sometimes family caregivers just need to contact a local non-profit to find out more information.  Other times, parents may need a professional paid advocate or even an attorney.  By advocating for their child with special needs, families can get the services their child needs resulting in better outcomes.  Next month I’ll cover how parents can move from individual to systems advocacy to make positive changes for their family and other families like theirs. 
  
Resources:
Parent Training and Information Centers
 

 
 

 
 
Council of Parent Attorneys and Advocates (map)
 

 



 
 
Family Voices/Family-to-Family Health Information Centers
 
 
 
 
National Disability Rights Network
 
 
 
 
Parent-to-Parent
 







 
 
 
National Association of Councils on Developmental Disabilities
 
 
National Council on Independent Living

 

 
 
 
Remain Hopeful,
 
Lauren
 
 
Lauren Agoratus is a parent/advocate who works for the Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family Voices (www.spanadvocacy.org), a national network that works to “keep families at the center of children’s healthcare” at www.familyvoices.org or FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269.  She also serves as NJ representative supporting caregivers across the lifespan for the Caregiver Action Network (formerly National Family Caregivers Association) in a volunteer capacity at http://caregiveraction.org/ or FB www.facebook.com/CaregiverActionNetwork.
 
 
 

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  8. My life was destroyed when my husband sent me packing, after 13 years we have been together. I was lost and helpless after trying so many ways to my husband back to me. One day at work, I was distracted, not knowing that my boss called me, so he sat and asked me what it was all about, I told him and he smiled and said it was no problem. I never understood what he meant by it was no problem getting back my husband, he said he used a spell to get back his wife when she left him for another man, and now they are together till date and initially I was shocked hearing something from my boss. He gave me an email address of the Prophet Abuvia which helped him get his wife back, I never believed that this would work, but I had no choice coming into contact with the sayings that I get done, and he asked for my information and that my husband was able to propose to throw him the spell and I sent him the details, but after two days, my mother called me that my husband was pleading that he wants me back, I never believed, because it was just a dream and I had to rush off to my mother's place and to my greatest surprise, was kneeling my husband beg me for forgiveness that he wants me and the child back home, when I gave prophet Abuvia a conversation regarding sudden change of my husband and he made clear to me that my husband will love me until the end of the world, that he will never leave for another woman. Now me and my husband is back together and started doing funny things he has not done before, he makes me happy and do what it is supposed to do as a man without nagging. Please if you need help of any kind need, please contact Prophet Abuvia for help. His email is prophet.abuvia@gmail.com his website is http://prophetAbuviasolutiontemple.webs.com/

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  10. Hey guys, Get your ex back fast with the help of a real and genuine spell caster.
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  11. Good Day everybody.
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  13. I feel so joyful today because of the help Doctor Ogudugu has rendered to me getting my Husband back. I've been married for 6 years and it has been so terrible because my husband was cheating on me and was seeking for a divorce. But when i came across Doctor Ogudugu Email on the internet posted by a lady, i decided to get in touch with him and i explained my situation to him and then seek his help but to my greatest surprise he told me that he will help me with my case for there is no problem without a solution. Here i am celebrating because my Husband is back home and am really enjoying my marriage and what a great celebration. I will keep on testifying on the internet because Doctor Ogudugu is truly a helper who God has sent to help us all. Why not contact Doctor Ogudugu now if you are facing any challenges in your relationship life. Email: (greatogudugu@gmail.com ). Call or WhatsApp No: +2348139793075 for further inquiry and assistance.

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  22. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

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  23. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

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  25. DR. GREAT IS THE BEST SPELL CASTER ONLINE WHO RESTORED MY BROKEN RELATIONSHIP AND I HIGHLY RECOMMENDS DR. GREAT TO ANYONE IN NEED OF HELP! 

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  26. You can get your ex back and cure your infertility problems with Dr. Odunga.

    When I met Dr. Odunga, my husband had divorced me because I was a barren woman of 41 and I have been married for 21 years. I was devastated and confused as a woman of my age until when I went online to look for help on how to get my marriage back then I met Dr. Odunga. Within 48 hours of contacting him, my ex husband came back home and pleaded for me to forgive him and take him back after 5 months of divorce. I accepted him back and then I told Dr. Odunga of my bareness for him to help me with child. He did the spell and sent me the natural herbs for fertility that I will use and immediately I used this medicine, I conceived. My husband got me pregnant and I gave birth to a baby girl. Presently, I am a mother of a beautiful girl and I am happy in my marriage. This is all thanks to Dr. Odunga and his wonderful work. Contact Dr. Odunga Via Whats App number +2348167159012. Email at: odungaspelltemple@gmail.com

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  27. I am from Wales here in UK. Contact Priest Odunga at odungaspelltemple@gmail.com if you really want your ex back or solve your fertility problem in your marriage. I contacted a spell caster to help me make my boyfriend propose to me and I was not happy i contacted him. My boyfriend was a fine handsome and caring man and all of a sudden, his attitude towards me changed and my friends mocked me for dating him for so long and never got married because he never popped the question. My boyfriend soon left me and this was the complete opposite i wanted from this spell caster. After my experience with that spell caster, i never believed i will work with any spell caster again until I read a testimony about PRIEST ODUNGA SPELL TEMPLE. I am now a happy woman for contacting such man who brought my ex boyfriend to me in 3 days of contact and i was overjoyed. My ex boyfriend proposed to me and we got married July 13th 2018 @ Estorio. Why did I not contact this man at first before meeting the first one who didn"t help my situation? I will not want anybody out there to make the same mistake I did but contact the solid and trusted spell caster who will help you at odungaspelltemple@gmail.com or contact his WHATSAPP number at +2348167159012 and you will meet this Priest Odunga to help you

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