- - - - - - - - - - - - - - -
When trying to get services for their children with special
needs, family caregivers may run into roadblocks. There are organizations that can help for
free, but sometimes a paid advocate or even a lawyer is needed.
When or why would
family caregivers need help?
There are various systems that parents have to navigate,
including education, healthcare, and family support. Sometimes all it takes is a phone call to an
organization to find out what the system’s responsibilities are and what their
child’s rights are. Basic advocacy can
be done by keeping good notes and documenting everything. Sometimes, families need to send a letter
confirming a conversation because otherwise there’s no proof of what was
said. Other times parents may need to
send documents by certified/return receipt mail to prove it was received.
Education
Sometimes parents end up disagreeing with their school
district on instructional services, related services like therapies, or
placement, from inclusion to resource room, a self-contained class or even out
of district school. There are Parent
Training and Information Centers in every state that can offer free technical
assistance/parent advising to families (see Resources for links below.) If parents need more help, they can reach out
to their state Protection and Advocacy agency.
Paid advocates and lawyers can be found through the Council of Parent
Attorneys and Advocates.
Health Care
Other times families may be struggling with
getting medical equipment or other health care from their insurance company
(whether it’s private or through Medicaid.)
Or perhaps they’re trying to apply for SSI (Supplemental Security
Income.) Or maybe their child just got a new diagnosis. There are Family Voices State Affiliates and Family-to-Family
Health Information Centers in every state that offer free help to parents. If the issue is still unresolved, the next
step could be to contact free legal help from Disability Rights in each state (sometimes
call Protection and Advocacy.)
Family Support
Lastly some parents are dealing with state offices based on
their child’s disability. Sometimes all
they need is to talk to another trained volunteer of a child with the same
condition and these can be found through Parent-to-Parent. In every state, there is also a Governor’s
Council on Developmental Disability.
Lastly, for families going through transition to adult life, Centers for
Independent Living can help maximize their child’s potential. For free legal help if needed, Disability
Rights in each state would help with these family support systems as well.
Sometimes family caregivers just need to contact a local
non-profit to find out more information.
Other times, parents may need a professional paid advocate or even an
attorney. By advocating for their child
with special needs, families can get the services their child needs resulting
in better outcomes. Next month I’ll
cover how parents can move from individual to systems advocacy to make positive
changes for their family and other families like theirs.
Resources:
Parent Training and Information Centers
Council of Parent Attorneys and Advocates (map)
Family Voices/Family-to-Family Health Information Centers
National Disability Rights Network
Parent-to-Parent
National Association of Councils on Developmental
Disabilities
National Council on Independent Living
Remain Hopeful,
Lauren
Lauren Agoratus is a parent/advocate who works for the
Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family
Voices (www.spanadvocacy.org), a national network that works to
“keep families at the center of children’s healthcare” at www.familyvoices.org or FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269. She
also serves as NJ representative supporting caregivers across the lifespan for
the Caregiver Action Network (formerly National Family Caregivers Association)
in a volunteer capacity at http://caregiveraction.org/ or FB www.facebook.com/CaregiverActionNetwork.
I'm so excited everyone me and my husband are back together again! My husband said he is now gay and he dose not love me any more after 4 years that we have been together. I was hurt and helpless after trying so many ways to make my husband take me back. One day at work, i was absent minded not knowing that my boss was calling me, so he sat and asked me what its was all about i told him and he smiled and said that it was not a problem. I never understand what he meant by it wasn't a problem getting my husband back, he said he used a spell to get his wife back when she left him for another man and now they are together till date and at first i was shocked hearing such thing from my boss. He gave me the contact of the great spell caster who helped him get his wife back, i never believed this would work but i had no choice then to get in contact with the spell caster which i did, and he requested for my information and that of my husband to enable him cast the spell and i sent him the details and he also told me the items which will be needed in casting the spell which i provided him money to get, after two days, my mom called me that my husband came pleading that he wants me back, i never believed it because it was just like a dream and i had to rush down to my mothers place and to my greatest surprise, my husband was kneeling before me pleading for forgiveness that he wants me back home, then i gave Dr Unity a call regarding the sudden change of my husband and he made it clear to me that my husband will love me forever, that he will never leave my sight. Now me and my husband are back together again and has started doing pleasant things he hasn't done before, he makes me happy and do what he is suppose to do as a man without nagging. Please if you need help of any kind, kindly contact Dr Unity for help and you can reach him via Email : Unityspelltemple@gmail.com or call him on +2348072370762"Katy Brown from United States.
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Hello, I am Sheryln Coleman I’m the most happiest person on the face of the earth, after 6 months of sadness and sorrow without being with the one i love, i tried all my possible best to make sure i make my lover happy but it never seems to work out well it was like am doing everything in vain but all thanks goes to Dr Ogundu for coming to change all my worries and sadness to Joy. i knew the great man when i read some wonderful testimony about Dr Ogundu how he has helped lots of people on their relationship problems i was reading a magazine when i saw great testimonies, as well my predicament then i decided not to waste time because i have missed my lover so much i decided to contact him and share all my problem with him which he told me not to worry that he is assuring me that within 48 hours everything would be sorted out i believed Dr Ogundu so much because of how he has been helping many people, my boyfriend who left me for good suddenly replied my text and returned my calls and asked me to please forgive him i was so happy am so grateful to Dr Ogundu for what he has done for me and i promise to testify his goodness all through my life. If you are there passing the same problem or any kinds of problem contact this great man on his email address: drogunduspellcaster@gmail.com
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My life was destroyed when my husband sent me packing, after 13 years we have been together. I was lost and helpless after trying so many ways to my husband back to me. One day at work, I was distracted, not knowing that my boss called me, so he sat and asked me what it was all about, I told him and he smiled and said it was no problem. I never understood what he meant by it was no problem getting back my husband, he said he used a spell to get back his wife when she left him for another man, and now they are together till date and initially I was shocked hearing something from my boss. He gave me an email address of the Prophet Abuvia which helped him get his wife back, I never believed that this would work, but I had no choice coming into contact with the sayings that I get done, and he asked for my information and that my husband was able to propose to throw him the spell and I sent him the details, but after two days, my mother called me that my husband was pleading that he wants me back, I never believed, because it was just a dream and I had to rush off to my mother's place and to my greatest surprise, was kneeling my husband beg me for forgiveness that he wants me and the child back home, when I gave prophet Abuvia a conversation regarding sudden change of my husband and he made clear to me that my husband will love me until the end of the world, that he will never leave for another woman. Now me and my husband is back together and started doing funny things he has not done before, he makes me happy and do what it is supposed to do as a man without nagging. Please if you need help of any kind need, please contact Prophet Abuvia for help. His email is prophet.abuvia@gmail.com his website is http://prophetAbuviasolutiontemple.webs.com/
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I feel so joyful today because of the help Doctor Ogudugu has rendered to me getting my Husband back. I've been married for 6 years and it has been so terrible because my husband was cheating on me and was seeking for a divorce. But when i came across Doctor Ogudugu Email on the internet posted by a lady, i decided to get in touch with him and i explained my situation to him and then seek his help but to my greatest surprise he told me that he will help me with my case for there is no problem without a solution. Here i am celebrating because my Husband is back home and am really enjoying my marriage and what a great celebration. I will keep on testifying on the internet because Doctor Ogudugu is truly a helper who God has sent to help us all. Why not contact Doctor Ogudugu now if you are facing any challenges in your relationship life. Email: (greatogudugu@gmail.com ). Call or WhatsApp No: +2348139793075 for further inquiry and assistance.
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