Sunday, May 1, 2016

When Family Caregivers Need Help Navigating the Systems Helping Their Child




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When trying to get services for their children with special needs, family caregivers may run into roadblocks.  There are organizations that can help for free, but sometimes a paid advocate or even a lawyer is needed. 
 
 
When or why would family caregivers need help?
 
There are various systems that parents have to navigate, including education, healthcare, and family support.  Sometimes all it takes is a phone call to an organization to find out what the system’s responsibilities are and what their child’s rights are.  Basic advocacy can be done by keeping good notes and documenting everything.  Sometimes, families need to send a letter confirming a conversation because otherwise there’s no proof of what was said.  Other times parents may need to send documents by certified/return receipt mail to prove it was received. 
 
Education
 
Sometimes parents end up disagreeing with their school district on instructional services, related services like therapies, or placement, from inclusion to resource room, a self-contained class or even out of district school.  There are Parent Training and Information Centers in every state that can offer free technical assistance/parent advising to families (see Resources for links below.)  If parents need more help, they can reach out to their state Protection and Advocacy agency.  Paid advocates and lawyers can be found through the Council of Parent Attorneys and Advocates. 
 
Health Care
 
Other times families may be struggling with getting medical equipment or other health care from their insurance company (whether it’s private or through Medicaid.)  Or perhaps they’re trying to apply for SSI (Supplemental Security Income.) Or maybe their child just got a new diagnosis.  There are Family Voices State Affiliates and Family-to-Family Health Information Centers in every state that offer free help to parents.  If the issue is still unresolved, the next step could be to contact free legal help from Disability Rights in each state (sometimes call Protection and Advocacy.) 
 
 
 
 
Family Support
 
Lastly some parents are dealing with state offices based on their child’s disability.  Sometimes all they need is to talk to another trained volunteer of a child with the same condition and these can be found through Parent-to-Parent.  In every state, there is also a Governor’s Council on Developmental Disability.  Lastly, for families going through transition to adult life, Centers for Independent Living can help maximize their child’s potential.  For free legal help if needed, Disability Rights in each state would help with these family support systems as well.      
 
 
 
Sometimes family caregivers just need to contact a local non-profit to find out more information.  Other times, parents may need a professional paid advocate or even an attorney.  By advocating for their child with special needs, families can get the services their child needs resulting in better outcomes.  Next month I’ll cover how parents can move from individual to systems advocacy to make positive changes for their family and other families like theirs. 
  
Resources:
Parent Training and Information Centers
 

 
 

 
 
Council of Parent Attorneys and Advocates (map)
 

 



 
 
Family Voices/Family-to-Family Health Information Centers
 
 
 
 
National Disability Rights Network
 
 
 
 
Parent-to-Parent
 







 
 
 
National Association of Councils on Developmental Disabilities
 
 
National Council on Independent Living

 

 
 
 
Remain Hopeful,
 
Lauren
 
 
Lauren Agoratus is a parent/advocate who works for the Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family Voices (www.spanadvocacy.org), a national network that works to “keep families at the center of children’s healthcare” at www.familyvoices.org or FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269.  She also serves as NJ representative supporting caregivers across the lifespan for the Caregiver Action Network (formerly National Family Caregivers Association) in a volunteer capacity at http://caregiveraction.org/ or FB www.facebook.com/CaregiverActionNetwork.
 
 
 

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  1. I'm so excited everyone me and my husband are back together again! My husband said he is now gay and he dose not love me any more after 4 years that we have been together. I was hurt and helpless after trying so many ways to make my husband take me back. One day at work, i was absent minded not knowing that my boss was calling me, so he sat and asked me what its was all about i told him and he smiled and said that it was not a problem. I never understand what he meant by it wasn't a problem getting my husband back, he said he used a spell to get his wife back when she left him for another man and now they are together till date and at first i was shocked hearing such thing from my boss. He gave me the contact of the great spell caster who helped him get his wife back, i never believed this would work but i had no choice then to get in contact with the spell caster which i did, and he requested for my information and that of my husband to enable him cast the spell and i sent him the details and he also told me the items which will be needed in casting the spell which i provided him money to get, after two days, my mom called me that my husband came pleading that he wants me back, i never believed it because it was just like a dream and i had to rush down to my mothers place and to my greatest surprise, my husband was kneeling before me pleading for forgiveness that he wants me back home, then i gave Dr Unity a call regarding the sudden change of my husband and he made it clear to me that my husband will love me forever, that he will never leave my sight. Now me and my husband are back together again and has started doing pleasant things he hasn't done before, he makes me happy and do what he is suppose to do as a man without nagging. Please if you need help of any kind, kindly contact Dr Unity for help and you can reach him via Email : Unityspelltemple@gmail.com or call him on +2348072370762"Katy Brown from United States.

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  7. My life was destroyed when my husband sent me packing, after 13 years we have been together. I was lost and helpless after trying so many ways to my husband back to me. One day at work, I was distracted, not knowing that my boss called me, so he sat and asked me what it was all about, I told him and he smiled and said it was no problem. I never understood what he meant by it was no problem getting back my husband, he said he used a spell to get back his wife when she left him for another man, and now they are together till date and initially I was shocked hearing something from my boss. He gave me an email address of the Prophet Abuvia which helped him get his wife back, I never believed that this would work, but I had no choice coming into contact with the sayings that I get done, and he asked for my information and that my husband was able to propose to throw him the spell and I sent him the details, but after two days, my mother called me that my husband was pleading that he wants me back, I never believed, because it was just a dream and I had to rush off to my mother's place and to my greatest surprise, was kneeling my husband beg me for forgiveness that he wants me and the child back home, when I gave prophet Abuvia a conversation regarding sudden change of my husband and he made clear to me that my husband will love me until the end of the world, that he will never leave for another woman. Now me and my husband is back together and started doing funny things he has not done before, he makes me happy and do what it is supposed to do as a man without nagging. Please if you need help of any kind need, please contact Prophet Abuvia for help. His email is prophet.abuvia@gmail.com his website is http://prophetAbuviasolutiontemple.webs.com/

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    I'm so excited my broken Marriage has been restored and my husband is back after a breakup, After 2 years of marriage, me and my husband has been into one quarrel or the other until he finally left me and moved to California to be with another woman. i felt my life was over and my kids thought they would never see their father again. i tried to be strong just for the kids but i could not control the pains that torments my heart, my heart was filled with sorrows and pains because i was really in love with my husband. Every day and night i think of him and always wish he would come back to me, I was really upset and i needed help, so i searched for help online and I came across a website that suggested that Dr Unity can help get ex back fast. So, I felt I should give him a try. I contacted him and he told me what to do and i did it then he did a (Love spell) for me. 28 hours later, my husband really called me and told me that he miss me and the kids so much, So Amazing!! So that was how he came back that same day,with lots of love and joy,and he apologized for his mistake,and for the pain he caused me and the kids. Then from that day,our Marriage was now stronger than how it were before,All thanks to Dr Unity. he is so powerful and i decided to share my story on the internet that Dr Unity real and powerful spell caster who i will always pray to live long to help his children in the time of trouble, if you are here and you need your Ex back or your husband moved to another woman, do not cry anymore, contact this powerful spell caster now. Here’s his contact: Email him at: Unityspelltemple@gmail.com ,
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  12. I feel so joyful today because of the help Doctor Ogudugu has rendered to me getting my Husband back. I've been married for 6 years and it has been so terrible because my husband was cheating on me and was seeking for a divorce. But when i came across Doctor Ogudugu Email on the internet posted by a lady, i decided to get in touch with him and i explained my situation to him and then seek his help but to my greatest surprise he told me that he will help me with my case for there is no problem without a solution. Here i am celebrating because my Husband is back home and am really enjoying my marriage and what a great celebration. I will keep on testifying on the internet because Doctor Ogudugu is truly a helper who God has sent to help us all. Why not contact Doctor Ogudugu now if you are facing any challenges in your relationship life. Email: (greatogudugu@gmail.com ). Call or WhatsApp No: +2348139793075 for further inquiry and assistance.

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  16. I am from Wales here in UK. Contact Priest Odunga at odungaspelltemple@gmail.com if you really want your ex back or solve your fertility problem in your marriage. I contacted a spell caster to help me make my boyfriend propose to me and I was not happy i contacted him. My boyfriend was a fine handsome and caring man and all of a sudden, his attitude towards me changed and my friends mocked me for dating him for so long and never got married because he never popped the question. My boyfriend soon left me and this was the complete opposite i wanted from this spell caster. After my experience with that spell caster, i never believed i will work with any spell caster again until I read a testimony about PRIEST ODUNGA SPELL TEMPLE. I am now a happy woman for contacting such man who brought my ex boyfriend to me in 3 days of contact and i was overjoyed. My ex boyfriend proposed to me and we got married July 13th 2018 @ Estorio. Why did I not contact this man at first before meeting the first one who didn"t help my situation? I will not want anybody out there to make the same mistake I did but contact the solid and trusted spell caster who will help you at odungaspelltemple@gmail.com or contact his WHATSAPP number at +2348167159012 and you will meet this Priest Odunga to help you

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  20. A GREAT SPELL CASTER (DR. EMU) THAT HELP ME BRING BACK MY EX GIRLFRIEND.
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  21. Omg I Finally Got Helped  !! I'm so excited right now, I just have to share my testimony on this Forum.. The feeling of being loved takes away so much burden from our shoulders. I had all this but I made a big mistake when I cheated on my wife with another woman  and my wife left me for over 4 months after she found out..  I was lonely, sad and devastated. Luckily I was directed to a very powerful spell caster Dr Emu who helped me cast a spell of reconciliation on our Relationship and he brought back my wife and now she loves me far more than ever.. I'm so happy with life now. Thank you so much Dr Emu, kindly Contact  Dr Emu Today and get any kind of help you want.. Via Email emutemple@gmail.com or Call/WhatsApp +2347012841542

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  26. Hello to everyone out here, I am here to share the unexpected miracle that happened to me … My name is Susan Christian , I live in London, UK. we got married for more than 9 years and have gotten two kids. thing were going well with us and we are always happy. until one day my husband started to behave in a way i could not understand, i was very confused by the way he treat me and the kids. later that month he did not come home again and he called me that he want a divorce, i asked him what have i done wrong to deserve this from him, all he was saying is that he want a divorce that he hate me and do not want to see me again in his life, i was mad and also frustrated do not know what to do, i was sick for more than 2 weeks because of the divorce. i love him so much he was everything to me without him my life is incomplete. i told my sister and she told me to contact a spell caster, i never believe in all this spell casting of a thing. i just want to try if something will come out of it. i contacted Dr Emu for the return of my husband to me, they told me that my husband have been taken by another woman, that she cast a spell on him that is why he hate me and also want us to divorce. then they told me that they have to cast a spell on him that will make him return to me and the kids, they casted the spell and after 24 hours my husband called me and he told me that i should forgive him, he started to apologize on phone and said that he still live me that he did not know what happen to him that he left me. it was the spell that he Dr Emu casted on him that make him come back to me today, me and my family are now happy again today. thank you Dr Emu for what you have done for me i would have been nothing today if not for your great spell. i want you my friends who are passing through all this kind of love problem of getting back their husband, wife , or ex boyfriend and girlfriend to contact Dr Emu ,if you need his help you can contact him through his private mail: emutemple@gmail.com or you can contact him through his website https://emutemple.wordpress.com/ fb page Https://web.facebook.com/Emu-Temple-104891335203341 and you will see that your problem will be solved without any delay.

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