Tuesday, March 1, 2016

Supported Decision-Making Can Benefit Children with Special Needs and Family Caregivers




- - - - - - - - - - - - - - -


Children with special health care needs should have a choice in what happens in their lives, especially as they become adults.  There are things that family caregivers can do to help their child self-advocate and learn how to make good decisions.

Background

The “next generation” of self-determination is Supported Decision-Making.  This means that the individual makes his/her own decisions with the help of a supporter or a support team.  Children with special needs have different capabilities regarding decision-making, but they can make choices with support.  As adults, they should have a say in where they live, work, post-secondary education, etc.  Many family caregivers are advised to use the legal process of guardianship for their child, especially those with developmental or intellectual disabilities.  There is some flexibility in states using limited guardianships, but this still takes away many of the rights of individuals with disabilities.  Using Supported Decision-Making will let people with disabilities make the best choices in their lives, with support.

Alternatives to Guardianship

Advanced Directives

v  This documents choices for end-of-life care and are also called “living wills.”

Healthcare Proxy

v  This document is used for medical decisions.
 
Power-of-attorney

v  Another person has the control over legal decisions.  Note: a “durable” power-of-attorney can be revoked if the person has temporary incapacity.
 
Supported Decision- Making Agreements (some states have forms-See Resources)

v  Making decisions with assistance from a support person. 

How This Helps Family Caregivers 

Research has found that self-determination results in better health, independence, community inclusion, and understanding and opposition to potential abuse.[i]  On the other hand, guardianship may “have a “significant negative impact on . . . physical and mental health, longevity, ability to function, and reports of subjective wellbeing.”[ii]   

New initiatives emphasize “person-centered planning” and Supported Decision Making.  Person-centered planning considers the assets and preferences of the individual (See Resources.)  In healthcare, there is a new focus on “shared decision-making.”  Supported Decision-Making will apply to all areas of the person’s life and is thought of as “autonomy with support.”  Children with disabilities should be taught to self-advocate in order to have control over decisions throughout their lives.       

Now there are new options for family caregivers of children with special needs.  This is a personal decision for each family.  Even if the child will never live completely independently, it is essential that children with special needs get opportunities to make choices from an early age.  Children with disabilities should have as much input as they can, based on their abilities.  Supported decision-making follows the belief that “everyone has the right to make choices[iii].”

Resources: 

Alternatives to Guardianship factsheet-

REACH for Transition: Supported Decision-Making & Alternatives to Guardianship
http://www.spanadvocacy.org/content/supported-decision-making-and-alternatives-guardianship#overlay-context=content/workshopsevents


Getting the Community Life You Want: A Guide to Home and Community Based Services Advocacy

 
 
National Resource Center for Supported Decision-Making
 
 
 
Person-Centered Planning Tool
http://www.nj.gov/humanservices/ddd/documents/Documents%20for%20Web/PCPT%203-13-13.pdf


Supported Decision-Making Toolkit (including resources on forms)



*This is an edited version of my article in the forthcoming March issue of Exceptional Parent magazine at www.eparent.com.
 
Remain Hopeful,
 
Lauren
 
Lauren Agoratus is a parent/advocate who works for the Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family Voices (www.spanadvocacy.org), a national network that works to “keep families at the center of children’s healthcare” at www.familyvoices.org or FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269.  She also serves as NJ representative supporting caregivers across the lifespan for the Caregiver Action Network (formerly National Family Caregivers Association) in a volunteer capacity at http://caregiveraction.org/ or FB www.facebook.com/CaregiverActionNetwork.


[i] Ishita Khemka, Linda Hickson, Gillian Reynolds Evaluation of a decision-making curriculum designed to empower women with mental retardation to resist abuse Am J Ment Retard. 2005 May;110(3):193-204.
Michale Wehmeyer, Michelle Schwartz Exceptional Children 1998, Vol. 63, No. 2, pp. 245-255.
Wehmeyer, M. L., Kelchner, K., & Richards, S. (1996). Essential characteristics of self-determined behaviors of adults with mental retardation and developmental disabilities. American Journal on Mental Retardation, 100, 632-642.
 
[ii] Jennifer L. Wright, Guardianship for Your Own Good:  Improving the Well-Being of Respondents and Wards in the USA, 33 Int’l J.L. & Psychiatry 350 (2010)
 
[iii] http://www.supporteddecisionmaking.org/

22 comments:

  1. Hi, I'm very excited sharing this amazing testimony about Dr Frank Ojo a spell caster who save my marriage and brought my husband back to me today.! A very big problem occurred in my Marriage seven months ago, between me and my husband . so terrible that he took the case to court for a divorce. he said that he never wanted to stay with me again,and that he didn't love me anymore.So he packed out of the house and made me and my children passed through severe pain. I tried all my possible means to get him back,after much begging,but all to no avail.and he confirmed it that he has made his decision,and he never wanted to see me again. So on one evening,as i was coming back from work,i met an old friend of mine who asked of my husband .So i explained every thing to him,so he told me that the only way i can get my husband back,is to visit a spell caster,because it has really worked for him too.So i never believed in spell,but i had no other choice,than to follow his advice. Then he gave me the email address of the spell caster whom he visited. TEMPLEOFLOVEANDPROSPERITY@GMAIL.COM. So the next morning,i sent a mail to the address he gave to me,and the spell caster assured me that i will get my husband back the next day. What an amazing statement!! I never believed,so he spoke with me, and told me everything that i need to do. Then the next morning, So surprisingly, my husband who didn't call me for the past 7 months, gave me a call to inform me that he was coming back. So Amazing!! So that was how he came back that same day,with lots of love and joy,and he apologized for his mistake,and for the pain he caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster. So, i will advice you out there if you have any problem contact Dr Frank Ojo, i give you 100% guarantee that he will help you.. Email him at: Templeofloveandprosperity@gmail.com .Name: Amanda Bryan, From: UK . Thanks for reading .

    ReplyDelete
    Replies
    1. I GOT A FAST LOAN @ 2% INTEREST RATE with victorialawson@financier.com

      I am a single mother with two kids. i was homeless, stuck in a financial situation and i needed money to pay debt and pay for my husband medical bill and his funeral cost. I tried seeking loans from various loan firms both private and corporate but never with success and most banks declined my credit. Then i was introduced to VICTORIA LAWSON LOAN FIRM by a friend and i applied immediately with { victorialawson@financier.com } loan sum of $30,000USD and today i could get home, owner business, my kids are doing well at the moment. So dear, if you must contact any firm with reference to securing a loan with low interest rate of 2% and good repayment plans, Contact Victoria Lawson Loan Firm with ( victorialawson@financier.com ) I am so happy now and i decided to let people know more about her, she offers all kinds of loans. You can contact her company today

      *Full Name:_________

      *Address:_________

      *Tell:_________

      *loan amount:_________

      *Loan duration:_________

      *Country:_________

      *Purpose of loan:_________

      *Monthly Income:__________

      *Occupation__________

      *Next of kins :_________

      *Email :_________

      Delete
  2. How to stop your break up or divorce and win back your lost love... right now...no matter how hopeless your situation seems... read my testimony.. I was hurt and heart broken when a very big problem occurred in my marriage seven months ago, between me and my husband . so terrible that he took the case to court for a divorce. he said that he never wanted to stay with me again,and that he didn't love me anymore.So he packed out of the house and made me and my children passed through severe pain. I tried all my possible means to get him back,after much begging,but all to no avail.and he confirmed it that he has made his decision,and he never wanted to see me again. So on one evening,as i was coming back from work,i met an old friend of mine who asked of my husband .So i explained every thing to him,so he told me that the only way i can get my husband back,is to visit a spell caster,because it has really worked for him too.So i never believed in spell,but i had no other choice,than to follow his advice. Then he gave me the Email address of the spell caster whom he visited. Templeofloveandprosperity@gmail.com . So the next morning,i sent a mail to the address he gave to me,and the spell caster assured me that i will get my husband back the next day. What an amazing statement!! I never believed,so he spoke with me, and told me everything that i need to do. Then the next morning, So surprisingly, my husband who didn't call me for the past 7 months, gave me a call to inform me that he was coming back. So Amazing!! So that was how he came back that same day,with lots of love and joy,and he apologized for his mistake,and for the pain he caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster. So, i will advice you out there if you have any problem contact Dr Frank Ojo, i give you 100% guarantee that he will help you.. Email him at: Templeofloveandprosperity@gmail.com ,or visit his Web site to know more about him: http://africatemple.yolasite.com , Name: Wendy Owen , From:UK. Thank you sooooo much!!!

    ReplyDelete
  3. My life became devastated when my husband sent me packing, after 8 years that we have been together. I was lost and helpless after trying so many ways to make my husband take me back. One day at work, i was absent minded not knowing that my boss was calling me, so he sat and asked me what its was all about i told him and he smiled and said that it was not a problem. I never understand what he meant by it wasn't a problem getting my husband back, he said he used a spell to get his wife back when she left him for another man and now they are together till date and at first i was shocked hearing such thing from my boss. He gave me an email address of the great spell caster who helped him get his wife back, i never believed this would work but i had no choice that to get in contact with the spell caster which i did, and he requested for my information and that of my husband to enable him cast the spell and i sent him the details, but after two days, my mom called me that my husband came pleading that he wants me back, i never believed it because it was just like a dream and i had to rush down to my mothers place and to my greatest surprise, my husband was kneeling before me pleading for forgiveness that he wants me and the kid back home, then i gave Happy a call regarding sudden change of my husband and he made it clear to me that my husband will love me till the end of the world, that he will never leave my sight. Now me and my husband is back together again and has started doing pleasant things he hasn't done before, he makes me happy and do what he is suppose to do as a man without nagging. Please if you need help of any kind, kindly contact Happy for help and you can reach him via email: happylovespell2@gmail.com

    ReplyDelete
  4. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the internet one day, I came across a website that suggested that Dr Unity can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Three days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Unity . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: Unityspelltemple@gmail.com .

    ReplyDelete
  5. Hi, I am a USA citizen, am here to testify how i got my Ex back with the help of this God-sent called Dr Unity for the great things he has done in my life.. First of all i want to thank mareen for the post she made on how Dr Unity helped her in bringing back her lover. At first when i saw the posting i was so happy and in the other hand so scared,That this might not be real, Then i decided to give it a try in which i contacted Dr Unity and told him how my lover left me for another lady for the past 3years and i have been lonely and depressed without him,So i asked him if he has helped anyone called mareen and he said yes, that was the lady he helped in bringing back her lover. I said good and i told him that if he can help me in bringing back my own lover,He laughed and said once i have contacted him that my problem will be solved.He said that my lover will be back to me within 48hours, Truly when the 48hours was completed i got a text from someone saying am sorry, then i decided to call the number i saw it was my lover Steve voice.i was so happy he was begging me and crying on phone, That he is ready to do anything that will make me happy in life,So i told him to come over which he did,As he was coming he came with a brand new Car as gift. i am so happy today with the help of Dr Unity. He has proven to me that he is not going to leave me for another lady again and stay with me forever, Am so happy today and am also thanking mareen for posting this early.Dr Unity you are truly a man of your word. He can also any kind of sickness and he can solve any kind of problems in this world. Friends i believe Dr Unity is a man to trust and believe on. You don't need to cry anymore Dr Unity has been sent to clean our tears you can contact him on his Email: Unityspelltemple@gmail.com or cell phone +2348072370762.

    ReplyDelete
  6. Hi, my girlfriend of a year had a bit broke up with me and went back to her EX-boyfriend. She said our relationship lacked the conversation piece because am a very quiet person and she don't feel loved by me. I felt heart broken and it affected me that i couldn't concentrate properly at my place of work for i very much loved her and need to get her back and my last chance was getting a love spell. I entered on the website http://doctorokpamenpowerfulspelltemple.webs.com and made contact with the Doctor for i read that he has a lot of positive feedback with his spells. I’m not disappointed because my lover came back to me within 24 hours after getting a love spell from the Doctor called Osemu Okpamen. We are happy couples now and if you need any kind of help, Email him on ( doctorokpamenspelltemple@hotmail.com or whats-app +2348135254384 ). Michael Snapp, +1 (305) 647-6660 USA.

    ReplyDelete
  7. Hi everyone! so excited my boyfriend is back after a break up!After being in relationship with my boyfriend for 3 years, he broke up with me, I did everything possible to bring him back but all was in vain, I wanted him back so much because of the love I have for him, I begged him with everything, I made promises but he refused. I explained my problem to someone online and she suggested that I should rather contact a spell caster that could help me cast a spell to bring him back but I am the type that never believed in spell, I had no choice than to try it, I mailed the spell caster, and he told me there was no problem that everything will be okay before three days, that my ex will return to me before three days, he cast the spell and surprisingly in the second day, it was around 4pm. My ex called me, I was so surprised, I answered the call and all he said was that he was so sorry for everything that happened, that he wanted me to return to him, that he loves me so much. I was so happy and went to him, that was how we started living together happily again. Since then, I have made promise that anybody I know that have a relationship problem, I would be of help to such person by referring him or her to the only real and powerful spell caster who helped me with my own problem and who is different from all the other ones out there. Anybody could need the help of the spell caster, like of issue of not be able to get pregnant for many years, lotto, his email is Unityspelltemple@gmail.com or call him on +2348072370762 you can email him if you need his help in your relationship or any other problem like wining lottery your problem can never remain the same again, it will turn a thing of the past in your life.I am Rhonda joseph, I am a US citizen, 48 years Old. I reside here in Sunny-Dale Ave. My residential address is as follows. 1934 Sunny-Dale Ave,San Francisco,Ca 94134 , United States.

    ReplyDelete
  8. It's a thing of joy to have someone on earth who God almighty has sent to redeem and help those that are in captivity. My husband divorced me but Doctor Osemu Okpamen recently saved my broken marriage again. You can find more on my blog-post here ( http://wagnerjessi.blogspot.com ) about how my marriage was reunited. Wagner Jessi, UK, Hampshire.

    ReplyDelete
  9. Hello, I am Sheryln Coleman I’m the most happiest person on the face of the earth, after 6 months of sadness and sorrow without being with the one i love, i tried all my possible best to make sure i make my lover happy but it never seems to work out well it was like am doing everything in vain but all thanks goes to Dr Ogundu for coming to change all my worries and sadness to Joy. i knew the great man when i read some wonderful testimony about Dr Ogundu how he has helped lots of people on their relationship problems i was reading a magazine when i saw great testimonies, as well my predicament then i decided not to waste time because i have missed my lover so much i decided to contact him and share all my problem with him which he told me not to worry that he is assuring me that within 48 hours everything would be sorted out i believed Dr Ogundu so much because of how he has been helping many people, my boyfriend who left me for good suddenly replied my text and returned my calls and asked me to please forgive him i was so happy am so grateful to Dr Ogundu for what he has done for me and i promise to testify his goodness all through my life. If you are there passing the same problem or any kinds of problem contact this great man on his email address: drogunduspellcaster@gmail.com
    1. Getting your lover or husband back
    2. Money spell/ good luck spell
    3. Prosperity spell
    4. Protection spells/supernatural power
    5. Get a job spell
    6. Promotion spells
    7. Getting your money back
    8. Freedom spells
    9. Love spell
    10. Avenging spell

    ReplyDelete
  10. My Name is Debbie Gibson, i'm very grateful to this man Dr Ultimate Spell Caster for helping me bring back my husband’ after he abandoned me for six months with pains and tears in my heart. Before the breakup, he usually insult and see nothing good in me and any thing i do, i felt as if i was cursed. my friends advised me to let go but i couldn’t because of the love i have for him. So i had to seek for help and i saw so many good testimonies about this man Dr Ultimate and i decide to contact him and explain my problem to him and he assured me of good result.After two days of my contact with Dr Ultimate my husband came back with apologies. Today i am also sharing my testimonies and experience about Dr Ultimate which is so wonderful and i will never stop publishing his name so that who ever that is going through breakup and problem in their relationship should also contact him { ultimatespellcaster4@gmail.com } Site: http://ultimatespellcaste.wix.com/mysite

    ReplyDelete
  11. My Name is Debbie Gibson, i'm very grateful to this man Dr Ultimate Spell Caster for helping me bring back my husband’ after he abandoned me for six months with pains and tears in my heart. Before the breakup, he usually insult and see nothing good in me and any thing i do, i felt as if i was cursed. my friends advised me to let go but i couldn’t because of the love i have for him. So i had to seek for help and i saw so many good testimonies about this man Dr Ultimate and i decide to contact him and explain my problem to him and he assured me of good result.After two days of my contact with Dr Ultimate my husband came back with apologies. Today i am also sharing my testimonies and experience about Dr Ultimate which is so wonderful and i will never stop publishing his name so that who ever that is going through breakup and problem in their relationship should also contact him { ultimatespellcaster4@gmail.com } Site: http://ultimatespellcaste.wix.com/mysite

    ReplyDelete
  12. My Name is Debbie Gibson, i'm very grateful to this man Dr Ultimate Spell Caster for helping me bring back my husband’ after he abandoned me for six months with pains and tears in my heart. Before the breakup, he usually insult and see nothing good in me and any thing i do, i felt as if i was cursed. my friends advised me to let go but i couldn’t because of the love i have for him. So i had to seek for help and i saw so many good testimonies about this man Dr Ultimate and i decide to contact him and explain my problem to him and he assured me of good result.After two days of my contact with Dr Ultimate my husband came back with apologies. Today i am also sharing my testimonies and experience about Dr Ultimate which is so wonderful and i will never stop publishing his name so that who ever that is going through breakup and problem in their relationship should also contact him { ultimatespellcaster4@gmail.com } Site: http://ultimatespellcaste.wix.com/mysite

    ReplyDelete
  13. My Name is Debbie Gibson, i'm very grateful to this man Dr Ultimate Spell Caster for helping me bring back my husband’ after he abandoned me for six months with pains and tears in my heart. Before the breakup, he usually insult and see nothing good in me and any thing i do, i felt as if i was cursed. my friends advised me to let go but i couldn’t because of the love i have for him. So i had to seek for help and i saw so many good testimonies about this man Dr Ultimate and i decide to contact him and explain my problem to him and he assured me of good result.After two days of my contact with Dr Ultimate my husband came back with apologies. Today i am also sharing my testimonies and experience about Dr Ultimate which is so wonderful and i will never stop publishing his name so that who ever that is going through breakup and problem in their relationship should also contact him { ultimatespellcaster4@gmail.com } Site: http://ultimatespellcaste.wix.com/mysite

    ReplyDelete
  14. My Name is Debbie Gibson, i'm very grateful to this man Dr Ultimate Spell Caster for helping me bring back my husband’ after he abandoned me for six months with pains and tears in my heart. Before the breakup, he usually insult and see nothing good in me and any thing i do, i felt as if i was cursed. my friends advised me to let go but i couldn’t because of the love i have for him. So i had to seek for help and i saw so many good testimonies about this man Dr Ultimate and i decide to contact him and explain my problem to him and he assured me of good result.After two days of my contact with Dr Ultimate my husband came back with apologies. Today i am also sharing my testimonies and experience about Dr Ultimate which is so wonderful and i will never stop publishing his name so that who ever that is going through breakup and problem in their relationship should also contact him { ultimatespellcaster4@gmail.com } Site: http://ultimatespellcaste.wix.com/mysite

    ReplyDelete

  15. Sincerely i was so crushed when my Husband of 8 years left me and moved to Quebec City to be with another woman.The pains was just too much for me to bear that I couldn't just bear it anymore. So i had to reached out to the Internet for help until i found out that Dr. Trust was the real deal.. I had tried the whole lot I knew, and with your spells, blessings and extraordinary magical powers, you did all the work for me, which you have guaranteed me positive result in 48 hours, my Ex Husband came back to me and he was remorseful for the whole lot he has done And now my life is balanced and i am happy again. Dr. Trust you do a great service to people. Friends in case you need the help of Dr.Trust kindly mail him on Ultimatespellcast@gmail.com or Ultimatespellcast@yahoo.com call +2348156885231. website http://ultimatespellcast8.wix.com/ultimatespellcast Sir, i will forever recommend you all over the world. Regina Lee from Canada

    ReplyDelete