Health has information for families but also for children.Using this type of information may make it
easier for parents to explain the condition to their children.
Support for Family Caregivers
may also want to talk to another parent who has already gone through the same
experience.Trained volunteers are
matched with family caregivers of children with the same condition through
Parent-to-Parent.The American Self-Help
Clearinghouse also has a listing of support groups nationally.
caregivers will feel more empowered once they know more about their child’s
NOTE:Part 2 will cover rare conditions and where
to find reliable information.