Sunday, March 1, 2015

Why “Health Passports” are so important for family caregivers of children with disabilities




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A recent article in the Wall Street journal, “Patient ‘Passports’ Make Sure People With Complex Cases Are Heard,” mentioned that, “Like a standard medical record, the patient passport has basic data such as medical diagnosis and prescription drugs. But there are also places where the patients provide the information, such as how they cope with health conditions and the activities they need assistance with, as well as their concerns about being hospitalized and their quality-of-life goals for after discharge. They may request counseling to help deal with illness, understand medical terms or discuss end-of-life care.” 
 
What is a Health Passport?
A Health Passport contains many pieces of health information.  An excellent sample for children with disabilities is “My Health Passport.”  This simple form includes: 

  v  Medical history summary
  v  Medications
  v  Allergies
  v  Pain management
  v  How the Child Communicates
  v  Mobility Needs
  v  Dietary Needs
  v  Ideas for Comfort 
 
How Can a Health Passport Help Children with Special Needs?
The WSJ mentions that in general it helps families communicate with health providers and also reduces the feeling of powerlessness.  This is particularly important for children with special health care needs who may feel they have no control over their own health.  My Health Passport allows the child to either fill out the form, or with help, state his/her likes/dislikes.  It will also reduce behavioral issues which can affect medical care.  For example, my daughter would get so upset during medical procedures in ICU that it affected her heartrate.  So we consulted with her developmental pediatrician and developed a behavioral plan for my daughter who has autism while she was in the hospital with important information that is in her permanent chart.   
 
The Health Passport can even help reduce medical errors, preventable rehospitalization, reduce costs, and most importantly result in better health outcomes for children and youth with special needs.
 
Resources:
Wall Street Journal:  Patient ‘Passports’ Make Sure People With Complex Cases Are Heard” http://www.wsj.com/articles/patient-passports-make-sure-people-with-complex-cases-are-heard-1422918741
My Health Passport
Spanish
Remain Hopeful,
Lauren  
Lauren Agoratus is a parent/advocate who works for the Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family Voices (www.spanadvocacy.org), a national network that works to “keep families at the center of children’s healthcare” at www.familyvoices.org or FB www.facebook.com/pages/Family-Voices-Inc-National/137783182902269.  She also serves as NJ representative supporting caregivers across the lifespan for the Caregiver Action Network (formerly National Family Caregivers Association) in a volunteer capacity at http://caregiveraction.org/ or FB www.facebook.com/CaregiverActionNetwork.
 
  
 
 
 

7 comments:


  1. OMG!!,I am out here to spread this good news to the entire world on how I got my ex husband back. . My name is Natasha Johnson,i live in Florida,USA,and I'm happily married to a lovely and caring husband ,with three kids. A very big problem occurred in my family seven months ago,between me and my husband .so terrible that he took the case to court for a divorce.he said that he never wanted to stay with me again,and that he didn't love me anymore.So he packed out of the house and made me and my children passed through severe pain. I tried all my possible means to get him back,after much begging,but all to no avail.and he confirmed it that he has made his decision,and he never wanted to see me again. So on one evening,as i was coming back from work,i met an old friend of mine who asked of my husband .So i explained every thing to him,so he told me that the only way i can get my husband back,is to visit a spell caster,because it has really worked for him too.So i never believed in spell,but i had no other choice,than to follow his advice. Then he gave me the email address of the spell caster whom he visited.{bravespellcaster@gmail.com}. So the next morning,i sent a mail to the address he gave to me,and the spell caster assured me that i will get my husband back the next day.What an amazing statement!! I never believed,so he spoke with me,and told me everything that i need to do. Then the next morning, So surprisingly, my husband who didn't call me for the past seven {7}months,gave me a call to inform me that he was coming back.So Amazing!! So that was how he came back that same day,with lots of love and joy,and he apologized for his mistake,and for the pain he caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster. So, i will advice you out there to kindly visit the same website { http://enchantedscents.tripod.com/lovespell/},if you are in any condition like this,or you have any problem related to "bringing your ex back. So thanks to the Dr Brave for bringing back my husband ,and brought great joy to my family once again. { bravespellcaster@gmail.com }, Thanks..

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    Replies

    1. (HOW I GOT MY LOVELY Ex WIFE BACK WITH THE HELP OF Dr. OKIKA) cALL HIM NOW +2348134367919'

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    2. (HOW I GOT MY LOVELY Ex WIFE BACK WITH THE HELP OF Dr. OKIKA) cALL HIM NOW +2348134367919'

      I am sharing my testimony to everyone that has tried everything possible and had lost hope on how they can get their ex back, I am from New york, USA, i want you all to know that their is one man called Dr Okika that work for me and after 2days of his spell cast, my ex came back to me without any delay, i am really happy now that we are together again and we are living happily with so much love and respect for each other, so i will advise everyone to ask for this same help of Dr. Okika so that you can be happy again and make your dreams and wishes you have with your ex come true just Here is his contact e-mail if you need help him too OKIKASPELLTEMPLE@GMAIL.COM OR OKIKASPELLTEMPLE@YAHOO.COM he will put smile on you face and make you happy again.

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  2. Wow! What a great idea in the post! What a concept! And beautiful theme that’s Amazing … Mary

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  3. want to share my testimony on how my husband came back home. My husband left home for two year after we got we hard a query I was looking for help who to get my husband back to me, I told my friend about my problem she told me that there is is a good spell cater who can help me get my husband back to me she take me there and I told the man about my
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