Sunday, March 1, 2015

Why “Health Passports” are so important for family caregivers of children with disabilities

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A recent article in the Wall Street journal, “Patient ‘Passports’ Make Sure People With Complex Cases Are Heard,” mentioned that, “Like a standard medical record, the patient passport has basic data such as medical diagnosis and prescription drugs. But there are also places where the patients provide the information, such as how they cope with health conditions and the activities they need assistance with, as well as their concerns about being hospitalized and their quality-of-life goals for after discharge. They may request counseling to help deal with illness, understand medical terms or discuss end-of-life care.” 
What is a Health Passport?
A Health Passport contains many pieces of health information.  An excellent sample for children with disabilities is “My Health Passport.”  This simple form includes: 

  v  Medical history summary
  v  Medications
  v  Allergies
  v  Pain management
  v  How the Child Communicates
  v  Mobility Needs
  v  Dietary Needs
  v  Ideas for Comfort 
How Can a Health Passport Help Children with Special Needs?
The WSJ mentions that in general it helps families communicate with health providers and also reduces the feeling of powerlessness.  This is particularly important for children with special health care needs who may feel they have no control over their own health.  My Health Passport allows the child to either fill out the form, or with help, state his/her likes/dislikes.  It will also reduce behavioral issues which can affect medical care.  For example, my daughter would get so upset during medical procedures in ICU that it affected her heartrate.  So we consulted with her developmental pediatrician and developed a behavioral plan for my daughter who has autism while she was in the hospital with important information that is in her permanent chart.   
The Health Passport can even help reduce medical errors, preventable rehospitalization, reduce costs, and most importantly result in better health outcomes for children and youth with special needs.
Wall Street Journal:  Patient ‘Passports’ Make Sure People With Complex Cases Are Heard”
My Health Passport
Remain Hopeful,
Lauren Agoratus is a parent/advocate who works for the Statewide Parent Advocacy Network and serves as the NJ Coordinator for Family Voices (, a national network that works to “keep families at the center of children’s healthcare” at or FB  She also serves as NJ representative supporting caregivers across the lifespan for the Caregiver Action Network (formerly National Family Caregivers Association) in a volunteer capacity at or FB


  1. OMG!!,I am out here to spread this good news to the entire world on how I got my ex husband back. . My name is Natasha Johnson,i live in Florida,USA,and I'm happily married to a lovely and caring husband ,with three kids. A very big problem occurred in my family seven months ago,between me and my husband .so terrible that he took the case to court for a divorce.he said that he never wanted to stay with me again,and that he didn't love me anymore.So he packed out of the house and made me and my children passed through severe pain. I tried all my possible means to get him back,after much begging,but all to no avail.and he confirmed it that he has made his decision,and he never wanted to see me again. So on one evening,as i was coming back from work,i met an old friend of mine who asked of my husband .So i explained every thing to him,so he told me that the only way i can get my husband back,is to visit a spell caster,because it has really worked for him too.So i never believed in spell,but i had no other choice,than to follow his advice. Then he gave me the email address of the spell caster whom he visited.{}. So the next morning,i sent a mail to the address he gave to me,and the spell caster assured me that i will get my husband back the next day.What an amazing statement!! I never believed,so he spoke with me,and told me everything that i need to do. Then the next morning, So surprisingly, my husband who didn't call me for the past seven {7}months,gave me a call to inform me that he was coming back.So Amazing!! So that was how he came back that same day,with lots of love and joy,and he apologized for his mistake,and for the pain he caused me and my children. Then from that day,our relationship was now stronger than how it were before,by the help of a spell caster. So, i will advice you out there to kindly visit the same website {},if you are in any condition like this,or you have any problem related to "bringing your ex back. So thanks to the Dr Brave for bringing back my husband ,and brought great joy to my family once again. { }, Thanks..



      I am sharing my testimony to everyone that has tried everything possible and had lost hope on how they can get their ex back, I am from New york, USA, i want you all to know that their is one man called Dr Okika that work for me and after 2days of his spell cast, my ex came back to me without any delay, i am really happy now that we are together again and we are living happily with so much love and respect for each other, so i will advise everyone to ask for this same help of Dr. Okika so that you can be happy again and make your dreams and wishes you have with your ex come true just Here is his contact e-mail if you need help him too OKIKASPELLTEMPLE@GMAIL.COM OR OKIKASPELLTEMPLE@YAHOO.COM he will put smile on you face and make you happy again.



      I am sharing my testimony to everyone that has tried everything possible and had lost hope on how they can get their ex back, I am from New york, USA, i want you all to know that their is one man called Dr Okika that work for me and after 2days of his spell cast, my ex came back to me without any delay, i am really happy now that we are together again and we are living happily with so much love and respect for each other, so i will advise everyone to ask for this same help of Dr. Okika so that you can be happy again and make your dreams and wishes you have with your ex come true just Here is his contact e-mail if you need help him too OKIKASPELLTEMPLE@GMAIL.COM OR OKIKASPELLTEMPLE@YAHOO.COM he will put smile on you face and make you happy again.

  2. Wow! What a great idea in the post! What a concept! And beautiful theme that’s Amazing … Mary

  3. want to share my testimony on how my husband came back home. My husband left home for two year after we got we hard a query I was looking for help who to get my husband back to me, I told my friend about my problem she told me that there is is a good spell cater who can help me get my husband back to me she take me there and I told the man about my
    problem and he said he is going to help me get him back I was thinking. He was joking he side I should go and in three days my husband will come back home to me. I was waiting on that day for my husband is going to come back home on that same day I was sleeping when my husband call me and told me is out side the house and I was very happy for what the great spell caster did I want you to help me thank Dr Zuma zuk of for bringing back my husband back to me. Please I know you I will need his help contact him email he can help you I believe in help very much he is a great man.

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  5. Nice read, i was speaking to a friend the other week about the same issue and gave her this url to visit.

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  6. در حال حاضر کاشت مو به عنوان یکی از شیوه های درمانی ریزش مو در خانم ها بویژه در اشخاصی که ریزش موی آنها پایه ژنتیکی و ارثی دارد شناخته شده است. به این نوع از ریزش مو “ریزش مو با الگوی زنانه” می گویند که نظیر “ریزش مو با الگوی مردانه” ژنتیکی است و جنبه خانوادگی دارد. این مدل از ریزش مو متداول ترین صورت ریزش موی دائم شناخته شده در خانم ها است .

  7. تجزیه و لیز چربی که معمولاً به عنوان لیپولیز شناخته شده یک روش لیپوساکشن غیر تهاجمی برای حذف چربی اضافی به خصوص در ناحیه‌ی پهلو است که بسیار سریع و بدون درد خواهد بود. این روش می‌تواند به طور مؤثر چربی‌های مقاوم در برابر رژیم غذایی یا ورزش را کاهش دهد. همچنین دارای عوارض و اثرات جانبی کمتری نسبت به روش‌های سنتی مانند لیپوساکشن است

  8. پزشکان از تکنیک‌های جدیدی در درمان واریس با لیزر استفاده می‌کنند تا رگ‌های واریسی و وریدهای عنکبوتی کوچک‌تر را ببندند. گاهی اوقات لیزر به عنوان مکمل اسکلروتراپی به منظور به حداکثر رساندن نتایج استفاده می‌شود. در این روش از هیچ برش یا سوزنی استفاده نخواهد شد.

  9. بالون معده یکی از جدیدترین انواع روش‌های کاهش وزن است. بالون معده همانند یک توپ پر از هوا، مایع یا مخلوطی از هر دو به طور موقت درون معده جاگذاری می‌شود. بالون‌های حاوی هوا به دلیل سبک‌تر بودن عوارض کمتری به همراه دارند. بالون سیلیکونی درون معده با نمک استریل پر می‌شود و سپس با محدود کردن فضای درون معده و کاهش مواد غذایی مصرفی به کم شدن وزن کمک می‌کند

    بالون معده

  10. خرید کادوی ولنتاین برای خانم ها و آقایان می تواند متقاوت یا شبیه به هم باشد. ولی در بیشتر اوقات کادوی خانم ها زرق و برق زیادتری دارد و کادوی آقایان هم مخصوص تر است. اگر شما هم تا به حال هدیه و کادویی برای این روز نخریده اید و یا مانده اید که چه کادویی بخرید ما به شما کمک می کنیم تا در این باره تصمیم بگیرید.

    I can’t believe this. A great testimony that i must share to all fibroid patient in the world. i never believed that their could be any complete cure for fibroid with out going for surgery ,i saw people’s testimony on internet on how Dr ODIA prepare herbal root and herbs that shrink there fibroid naturally. i had to try it too i contacted him on: and him told me how to get his herbal medicine, and you can,t believe that in just few weeks i started using it all my pains stop gradually . Right now i want to tell you all that i just give birth to a baby boy last month,and on till now' i have not had any pain, and i just went for text last week and the doctor confirmed that there is no trace of any fibroid in my system. after 8 year of suffering from fibroid am now free, Glory be to God for leading me to this great Dr ODIA I am so happy as i am sharing this testimony. My advice to you all who thinks that their is no herbal cure for fibroid that is Not true ,just contact him and get cure his email and you will be free and free forever, Try it and you will not regret it because it truly works. i hope to see your testimony soon.

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    اسماعیل سحاب مشاوره سئو  می کند. از جمله خدمات سئو سایت  که ایشان ارایه می دهد. قرار گرفتن در صفحه اول گوگل  کسب و کار شماست.

    وقتی شما کلمه یا عبارتی را در گوگل سرچ می کنید ممکن است صدها و یا حتی هزاران وب سایت وجود داشته باشد کلمه مورد نظر شما در آنها وجود داشته باشد اما اینکه کدام سایت ها جزو اولین سایت ها داخل لیست نمایش داده شود توسط جدیدترین الگوریتم های گوگل مشخص می شود. قطعا تمامی سایت ها سعی می کنند که اسم سایت آنها جزو لینک های اول لیست گوگل باشد، توسط الگوریتم هایی که گوگل برای اینکار مشخص کرده مشخص می شود.

    مشاوره SEO چیست؟

    در پاسخ به این سوال که «مشاور سئو چیست؟ » می توان به صورت ساده این گونه توضیح داد. سئو سایت یک فرایند مستمر ومدون است که بر روی سایت توسط کارشناس سئو انجام می گیرد تا ترافیک صحیح در زمان صحیح و با کاربر صحیح وارد سایت بشوند تا اکشنی از قبیل خرید، دانلود و … در سایت مورد نظر اتفاق بیافتد. کسی که می تواند در تسریع این فرآیند به سایت مورد نظر کمک کند مشاورسئو است.

    مشاور سئو کیست؟

    در حقیقت مشاور سئو به کسی گفته می شود که متخصص سئو بوده و دارای نمونه کار، سابقه پربار و تجربه گرانی است که می تواند با آنالیز کسب و کار شما، برای رسیدن به ترافیک اورگانیک بالا و در نهایت فروش بیشتر شما را راهنمایی صحیح کند.  توضیحات ذکر شده در بالا یک تعریف کامل از مشاور سئو حرفه ای است.

    خدمات seo یک فرایند مدون و ادامه دار است که باید همیشه ادامه داشته  باشد تا رقبای شما جایگاه فعلی تان را تصاحب نکنند.

  17. از خدمات شرکت آسرون ارائه قیمت میلگرد ذوب آهن با قیمت بروز است. برای استعلام قیمت میلگرد ذوب آهن اصفهان نیز می توانید به آسرون مراجعه کنید.
    برای خرید محصولات کارخانه نیشابور از جمله میلگرد نیشابور و استعلام قیمت میلگرد نیشابور می توانید با آسرون تماس بگیرید.
    برای خرید و یا سفارش اینترنتی محصولات آناهیتا از جمله میلگرد آناهیتا گیلان و استعلام قیمت میلگرد آناهیتا گیلان با آسرون تماس بگیرید.
    قیمت ورق پلی کربنات یزد : برای خرید یا سفارش آنلاین محصولات پلیمر طلایی یزد و اطلاع از لیست قیمت ورق پلی کربنات با آسرون تماس بگیرید.
    قیمت میلگرد راد: برای خرید یا سفارش آنلاین محصولات فولاد راد همدان و یا جهت اطلاع از لیست  میلگرد راد همدان می توانید با آسرون تماس بگیرید
    قیمت میلگرد ظفر بناب : برای خرید اینترنتی یا سفارش آنلاین محصولات ظفر بناب و اطلاع از لیست قیمت میلگرد ظفر بناب امروز در بازار با آسرون تماس بگیرید.
    قیمت ورق رابیتس مسعود : برای خرید اینترنتی یا سفارش آنلاین محصولات رابیتس مسعود و اطلاع از لیست قیمت رابیتس مسعود امروز در بازار با آسرون تماس بگیرید.
    قیمت ورق پلی کربنات اصفهان : برای خرید اینترنتی و یا اطلاع از قیمت ورق پلی کربنات اصفهان نوآوران آیدا پلاستیک به سایت آسرون مراجعه کنید.
    قیمت ایران رابیتس صادق : برای اطلاع آنلاین از قیمت محصولات رابیتس و خرید رابیتس می توانید فارغ از زمان و مکان با آسرون تماس بگیرید.


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  19. You can get your ex back and cure your infertility problems with Dr. Odunga.

    When I met Dr. Odunga, my husband had divorced me because I was a barren woman of 41 and I have been married for 21 years. I was devastated and confused as a woman of my age until when I went online to look for help on how to get my marriage back then I met Dr. Odunga. Within 48 hours of contacting him, my ex husband came back home and pleaded for me to forgive him and take him back after 5 months of divorce. I accepted him back and then I told Dr. Odunga of my bareness for him to help me with child. He did the spell and sent me the natural herbs for fertility that I will use and immediately I used this medicine, I conceived. My husband got me pregnant and I gave birth to a baby girl. Presently, I am a mother of a beautiful girl and I am happy in my marriage. This is all thanks to Dr. Odunga and his wonderful work. Contact Dr. Odunga Via Whats App number +2348167159012. Email at:

  20. میس و مسترفروشگاه لوازم آرایشی و بهداشتی


  21. فروشگاه اینترنتی رژلب ، مجموعه ی کاملی از بهترین برندهای صافی و تقویت کننده مو در سراسر جهان را فراهم آورده تا نیاز یکایک شما برای خرید مواد کراتینه مو به صورت پک و میلی ، انواع ماسک ها ، بوتاکس مو ، شامپو فاقد سولفات ، پلکس ، را برطرف کند.

  22. <a href="> خرید ریمل حجم دهنده ارزان قیمت</a>

  23. پزشکا
    بهترین کلینیک لیزر موهای زائد محلی است

  24. Osteoarthritis is one of the most common diseases worldwide. This disease is a case of arthritis and has affected many people. In general, it can be said that more than one hundred different types of osteoarthritis (orthosis) have been identified so far. Osteoarthritis is more common in women and is more likely to occur with factors such as aging.

  25. انواع خدمات ارتوپد فنی در مشهد و تولید کننده ی بهترین کفی طبی در ایران

  26. Back hump, also known as kyphosis, is one of the most common complications in the spine. Due to this disease, the curvature of the patient's spine, in its upper vertebrae, is more than normal. There are several possible causes for this condition. Among the reasons and factors affecting this complication, we can mention congenital factors and a set of acquired factors. In either case, the patient's spine will experience an abnormal increase.
    درمان قوز کمر
    درمان خار پاشنه
    بهترین کفی طبی

  27. دستگاه نانو استیم اصل

    بانه اورجینال
    خرید لوازم خانگی از فروشگاه بانه اورجینال – برادران کریم زاده
    فروشگاه بانه اورجینال با 3 سال سال سابقه فروش اینترنتی در زمینه لوازم خانگی یکی از معتبرترین فروشگاه های شناخته شده در سطح کشور است که با ارائه آموزش های دقیق و کامل نحوه تشخیص محصولات اصلی از تقلبی پشتیبان شما هموطنان گرامی می باشد.

  28. فروشگاه اوستاپلاس وارد کننده برند های چین: شیائومی، وانپلاس، ریلمی با گارانتی 18 ماهه اوستا پلاس

  29. هایفوتراپی
    پس از انجام هایفوتراپی شخص می تواند کارهای روزانه خود را بلافاصله و به راحتی انجام دهد، هایفوتراپی روشی کاملاً ایمن و بدون خطر است که مورد تایید FDA آمریکا است؛

  30. جراحان برتر
    همانطور که می دانید جراحی بینی گوشتی جزء پرطرفدارترین عمل های زیبایی به حساب می آید. به همین خاطر، افرادی که دارای بینی های گوشتی و پهن هستند دوست دارند این عمل زیبایی را امتحان کنند

  31. دکتر کلینی
    با توجه به این موضوع که بینی در مرکز صورت قرار گرفته و زیبایی آن بسیار مهم است افراد به دنبال عمل بینی بدون جراحی می روند تا زیبایی بینی خود را دو چندان کنند ،

  32. دکی یاب
    نکته مهم در افرادی که بینی استخوانی دارند سبک مدنظرشون بعد عمل هست .

  33. پزشکا
    این روزها جراحی های زیبایی بسیار رواج پیدا کرده به گونه‌ای که جراحان بسیاری در این زمینه فعالیت دارند.


  34. بهترین ظروف آرکوپال در بازار را می شناسید ؟  در این جا ما بهترین مارک ارکوپال ایرانی را معرفی می کنیم  و با انواع ظرف آرکوپال ها آشنا می شویم .


  35. پاپل چیست؟ برچسب پاپل یکی از پرکاربرد ترین لوازم جانبی تلفن همراه است. درون این برچسب تراشه NFC قرار دارد. وجود فناوری NFC در برچسب Popl موجب انتقال سریع اطلاعات تماس و شبکه های اجتماعی به گوشی دیگر می شود، به همین دلیل خرید Popl یا پاپل دارای اهمیت زیادی است. قیمت Popl یا پاپل بسیار مناسب بوده و خرید پاپل از بانه می تواند رفع کننده انتظارات ما باشد.

    قیمت پاپل

  36. هایفوتراپی
    شاید اسم هایفوتراپی امروزه زیاد به گوشتان خورده باشد در واقع هایفوتراپی جدیدترین تکنولوژی جوانسازی صورت و گردن است

  37. سرویسکار آسانسور در شرق تهران
    ساکنین آپارتمان‌های منطقه شرق شهر تهران، معمولا به دنبال شرکت معتبری در زمینه تعمیر آسانسور در شرق تهران هستند.

  38. بهترین جراح بینی گوشتی در تهران
    اگر بینی گوشتی دارید و خواهان جراحی بینی گوشتی در تهران هستید اولین قدم انتخاب بهترین جراح بینی گوشتی در تهران است

  39. شرایط اقساطی کردن هزینه درمان در شیراز بینی
    طبق قراردادی که ما با تمامی پزشکان شهر شیراز بستیم هرکس از جانب ما به پزشک معرفی شود

  40. جراحی بینی
    افرادی که برای انجام جراحی بینی پا پیش می گذارند با فکر زیباتر شدن و تغییر واضح در چهره شان زیر تیغ جراحی می روند

  41. جراحی زیبایی بینی
    . جراح بینی طی یک عمل جراحی که ممکن است عمل باز یا عمل بسته باشد

  42. Hello to everyone out here, I am here to share the unexpected miracle that happened to me … My name is Susan Christian , I live in London, UK. we got married for more than 9 years and have gotten two kids. thing were going well with us and we are always happy. until one day my husband started to behave in a way i could not understand, i was very confused by the way he treat me and the kids. later that month he did not come home again and he called me that he want a divorce, i asked him what have i done wrong to deserve this from him, all he was saying is that he want a divorce that he hate me and do not want to see me again in his life, i was mad and also frustrated do not know what to do, i was sick for more than 2 weeks because of the divorce. i love him so much he was everything to me without him my life is incomplete. i told my sister and she told me to contact a spell caster, i never believe in all this spell casting of a thing. i just want to try if something will come out of it. i contacted Dr Emu for the return of my husband to me, they told me that my husband have been taken by another woman, that she cast a spell on him that is why he hate me and also want us to divorce. then they told me that they have to cast a spell on him that will make him return to me and the kids, they casted the spell and after 24 hours my husband called me and he told me that i should forgive him, he started to apologize on phone and said that he still live me that he did not know what happen to him that he left me. it was the spell that he Dr Emu casted on him that make him come back to me today, me and my family are now happy again today. thank you Dr Emu for what you have done for me i would have been nothing today if not for your great spell. i want you my friends who are passing through all this kind of love problem of getting back their husband, wife , or ex boyfriend and girlfriend to contact Dr Emu ,if you need his help you can contact him through his private mail: or you can contact him through his website fb page Https:// and you will see that your problem will be solved without any delay.

  43. <a href=" بهترین جراح بینی طبیعی</a>