We're hopeful parents...
are you?


Our kids have all kinds of special needs, mild to severe. Some of us grieve the loss of our children. We do the very best we can, which often takes a toll on us. We come here to share our feelings with other parents who understand. We're searching for every parent of a child with special needs. Are you hopeful, too? If so, join us!

Find Us On...




Add a blog post to your profile at the Hopeful Parents Community...

and see it right here ↓

Join the Conversation
Holding
« little strings of grief | Main | Love and the single special needs-mom »
Wednesday
Jul292009

Being Open

 

La, la, la. The plans are set. I know who her teachers will be in the fall. It’s going to be a great year! But wait. Someone is leaving. Her main teacher for next year is taking a job somewhere else. I’m finding out through the grapevine, before his resignation papers have even been signed. Time to panic?

No.

Let me tell you a story. We were living in Virginia, and the school district was about 20 years behind when it came to autism. Asperger’s was hardly on their radar.

A massive search ensued. Todd is a hospital pharmacist, so we can pretty much go anywhere and were willing to do so, for a school capable of meeting our daughter’s needs. I researched and found a charter school specifically for kids with Asperger’s and/or ADHD. After a lot of research, I visited and was impressed.

We sold our house. Packed up everything. Moved to Ohio. Rented a house. Todd began working at a new hospital and we spent the summer getting to know the area.

In the fall, Riley started at the new school. Her teacher, whom we’d made a point of meeting over the summer to ease the transition, quit the first day. Rather than putting Riley in the type of class I observed, mostly functioning as a regular classroom, but with extra support, they put her in a small “autism” class with six extremely hyperactive boys. They weren’t budging on the placement because Riley was presenting as high need (due to the fact she was terrified).

Riley is a very nervous child. She has social deficits and sensory issues but anxiety is her biggest challenge. This set-up was like putting a kitten in a room with a bunch of rough, tumbly, loud, boisterous puppies. Oh, and the teacher they found to replace the seasoned one who quit? A new grad.

Each morning, Riley was hysterical. She did not want to go to school. On Friday, two weeks in, I picked her up at the end of the day to find all of the blood vessels broken in her eyes. How long and how hard had she been crying? I could not bring her back there.

That Sunday I went for a long walk. I could not believe I’d convinced my husband to quit his job and move to a state where we knew no one. I'd been trying to be open to new possibilities! It had felt so right. How could my intuition have been so wrong?

It was a gorgeous September day. The sky was bright blue against the white trunks of the Aspen trees. My own anxiety made it almost impossible for me to fill my lungs and breathe. Walking past a beautiful home with an Open House sign in front, I felt an urge to go in. It didn't make sense.

The realtor was a friendly blond woman. Probably forty. Probably a mom. She asked me to sign in, told me it’d been a slow day.

“I don’t know why I’m here. We’re not buying. We’re not even staying in Cleveland,” I told her.

Maybe she was bored, maybe she was just trying to be nice, maybe she was up for a good story, but she asked, “Why?”

The whole sad tale came spewing out of me, accompanied by tears and snot.

“We sold our house!”

“He quit his job!”

Soon, she was in tears,

“Broken blood vessels in her eyes?” She gasped, hands folded dramatically over her heart.

I nodded. She handed me a tissue.

I left feeling cleansed.

The poor woman.

That evening the phone rang and I saw the realty company on the caller ID. When I picked up she said,

“Michelle. The next person who came in to the Open House after you runs the Asperger’s inclusion program for one of the local school districts. She couldn’t say enough about it. She just loves her job! She said they have an amazing program. Do you want her number?”

What did I have to lose? 

In my first conversation with the new teacher, I got chills when she breezily stated the mantra I happen to live by,

“We create our own reality.”

This woman would turn out to be one of the most progressive, hopeful, forward thinking, influential people we will ever meet along Riley’s educational path. The program she’s created is a model for other schools. They know what they are doing. They can handle my daughter. In June, Riley completed her second year there in a mainstream inclusion class and she is thriving. I can breathe.

Sadly, I have no idea who that realtor was, and no way to thank her. I don't even remember the name of the street the open house was on. To me she is an angel.

So anyway, no, I’m not thrilled the teacher slated for Riley’s class next year is leaving. I’d heard good things about him.

I’m also not going to panic.

I've learned things have a way of working out, if I stay open to the possibilities.

Reader Comments (13)

I remember when my son's Autism Specialist left during the summer and we got a new one. Unfortunately the old Autism Specialist did not follow through with some things before she left and we had to scramble to get it done. It turned out to be a good year and our son (and his parents)learned that change can be good.

I hope things go well with you guys. Keep us posted. :)

July 29, 2009 | Unregistered CommenterAmazing_Grace

i'll say it for carrie ..

(all together now)

no accidents

none

a wonderful story

a fabulous family

a kid who will be far more than ok

love

;)

July 29, 2009 | Unregistered Commenterjess wilson

what a gorgeous story! i love that woman and i love you and i love that riley got to have that experience these last two years. i trust that something good is in store, even if it takes a bit of bumps to get there.

July 29, 2009 | Unregistered Commenterkyra

Great story - it'll be interesting to see what unfolds.

July 29, 2009 | Unregistered CommenterJenny

Michelle -
I love this story. It's one of several I'll never forget you sharing with me.

xo

July 29, 2009 | Unregistered Commenterpixiemama

Have goosebumps from head to toe after reading this. Wow.

July 29, 2009 | Unregistered Commentermama edge

Since "No accidents" has already been taken, let me just say this: THIS is why we need to share our stories with others, you just NEVER KNOW!

Can't talk now, gotta go wipe the tears and snot from my face.

July 29, 2009 | Unregistered CommenterGinger

This post (which I've read multiple times now, thank you very much!) has carried me through today. I suspect it will carry me through many more.

July 29, 2009 | Unregistered CommenterNiksmom

Ask and you shall receive.

You were asking. In some woo-woo sort of way, you were asking.

You threw it out there.

The universe? She listens. Sometimes, you gotta yell. Sometimes, it's but a whisper.

I am toasting that realtor with my coffee RIGHT NOW.

July 29, 2009 | Unregistered Commenterdrama mama

Michelle, thank you for pointing your blog readers to this fantastic place. :) I truly appreciated it.

Your post here touched my heart. When Ruth asked to go to camp this summer, I worried. The church camp that our congregation sponsors for camperships is a 3 hour drive from home. They have terrible thunder storms there. This is an ongoing difficulty for Ruth, even in the comfort of home. I hemmed and I hawed. What to do? Then, I recalled a camp that I worked at the summer she was an infant. It was 10 minutes from my house to the center of camp. I asked the pastor for some help, and though the church was not willing to change where their campership funds go, the pastor understands Ruth's needs. He made certain that almost half of the cost was covered. We managed the rest. Long story short, this was just meant to be. The new camp directors were folks that I knew when Ruth was born. There was a paraprofessional that understood Sensory Processing Disorder, as well as General Anxiety heading up one of the groups. The camper to counselor ratio was 2:1. Ruth had the time of her life, I just need to relax and let go of that ever present frenzy I feel when we encounter a new phase of her life.
Thank you for your insight, as always you and Riley are a blessing to us.
Cindy P :)

July 29, 2009 | Unregistered CommenterPoopsie

And here I was sitting and complaining that our school won't tell us which KG teacher my daughter will have so that we can start to work on transitioning her...instead I'll now be praying for similar angels for both of us!

July 30, 2009 | Unregistered CommenterKDL

What a wonderful, heart-encouraging story - one I will never forget. Thank you, thank you Michelle.

August 2, 2009 | Unregistered Commenterrhemashope

Thank you so much for sharing this story, Michelle! It does give one hope.

Our son is severely autistic. In the five years he's been in school he's gone through three resource teachers, two autism specialists and countless integration aides.

Our saving grace has been his OT, who has been with him every step of the way. She calls us at home when she should have clocked out. She spends hours training his aides, and makes sure he always gets the pick of the equipment the school board has to give. She loves him like her own. When times get really rough, I'm not at all surprised that she pops up at a meeting and offers a fresh perspective or agrees with us about what he needs instead of falling in line behind some administrator who just wants things easier for the staff.

We're very fortunate to have these special people in our lives, who keep us and our kids afloat when it feels we would otherwise drown in our own grief and fears.

Blessings,
Ruby

August 4, 2009 | Unregistered CommenterRuby in Montreal

PostPost a New Comment

Enter your information below to add a new comment.

My response is on my own website »
Author Email (optional):
Author URL (optional):
Post:
 
Some HTML allowed: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <code> <em> <i> <strike> <strong>