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Wednesday
Feb112009

Least Restrictive Environment Anxiety Attack

I just cracked open a beer. Not in celebration, my friends. I'm not quite to the point that there are tears in my beer quite yet (that doesn't happen til the after the third beer, and if I choose to hit the bottle of scotch in the cabinet). Truth is, I'm having a kind of anxiety attack at the moment.

In 12 hours, I'll plop down in a teeny tiny chair in a school resource room to plan my son's transition to a less restrictive classroom. I've been fighting for this transition for about a year now, and it's finally happening. He'll could move into his new school by the end of the month, depending on our negotiations tomorrow.

The Kid is the smartest, most fabulous child I've ever had the chance to know. Unfortunately, he struggles at school in almost every way possible. He's been diagnosed with ADHD and Asperger's Syndrome, and with those things come a heavy dose of sensory integration dysfunction, with a dash of anxiety. He's been in a day treatment / center based program of some sort or another since the fall of 2006. We're moving him to a self-contained classroom inside of a typical elementary school. He'll have access to typical peers for the first time since he was six.

Hold up. Side note: Who talks like that? "...access to typical peers?" Oh wait... Us. Hopeful parents, parents who hope their kids will have nice interactions with said typical peers... we talk like that.

The Kid in school needs constant support to stay on task, to transition from one thing to another; he needs a scribe to write for him, unless the purpose of the exercise is to actually practice the motions of writing; he needs a continual sensory diet to regulate his body; he needs support for social interactions and instruction in how to navigate the wild world of unpredictable conversations, games and social expressions.

I used to be that parent. You know, THAT parent. The parent that fought and fought and fought and fought AND fought and fought for the services that my son needed. It seemed as if each and every intervention I researched and tried out at home had never been heard of, had never been tried, had never before been put into an educational setting in my son's school district. They were really 'revolutionary' ideas, like using computers, adding occupational therapy to his day, providing positive support instead of punishment for behaviors. I, of course, know that what I proposed wasn't truly revolutionary, but it felt like I was coming out of left field, completely on my own for every school meeting.

Something happened last year. I have no idea what it was, but the school clicked with me. Finally. They took my suggestions and listened to my beliefs. A true team was formed, not just because they did what I told them to do (because they didn't in every case), but because we really started leaning on each other and considered each other authorities. They started providing OT. The instituted the scribe and the use of the computer for writing.

The Kid also went through an amazing tranformation at this time, which is a story for another day, but ultimately we got the right diagnosis, and the school and I started to see eye to eye. Everything came together, and The Kid has had unabashed success ever since.

Before these interventions, The Kid was a constant meltdown waiting to happen. His melt downs were due to sensory stimulus, social misfiring and a poorly planned behavioral plan. Once we got the other pieces put into the puzzle, his melt downs and his difficult behaviors essentially ceased, and peace was restored.

 

So now I sit here and ponder going back to a regular school. Of course, it's a regular school with a behavior classroom, but still. My experiences with all other school environments other than his current one have been a series of disappointments and continual uphill battles.

I'm trying my very hardest to keep in mind that I'm a proven expert on my child, and that his current school will back me up tomorrow. Deep down, I have the fear, the real, palpable fear, however, that they will be like all the others... All of the other schools that thought they knew better than I did, that had a "proven" system and that The Kid would eventually buy in to their program, rather than building a program around The Kid.

I'm shaking in my boots over here.

I know I have the fight in me. It just comes. But please, God, don't make me use it. Please.

I need to get another beer.

Molly posts, unregularly, at www.soapywater.blogspot.com.

 

Reader Comments (12)

I think you are amazing Molly, no matter where you post. Your honest way of sharing what you've learned along with your fears is truely inspiring. Thank you.

February 11, 2009 | Unregistered CommenterLorna

I am crying. I am so proud of you both. For the first time in a long time, I don't feel like I need to come running home. There aren't words for what I feel for you right now, secret blog or not.

February 11, 2009 | Unregistered CommenterMr Lady

I am AMAZED by both of you!

February 12, 2009 | Unregistered CommenterSarah Dawson

You rock, Molly. Seriously. I just love you and your young man. I will be moving into the "real" school system this year and I am trying not to freak (that beer sounds like a good idea actually). I only hope I'm as brave and proactive as you are. Truly.

February 12, 2009 | Unregistered CommenterLyndsey

I hope you're meeting goes well today. Sending you good vibes.....

February 12, 2009 | Unregistered Commentercms8741

I cheers you and the Kid. (even if it is 10 am and it's with a coffee instead of the sweet, sweet taste of Stella.)

February 12, 2009 | Unregistered CommenterZoeyjane

Thank you for your post,Molly .I have 2 special needs kids. They are completely opposite in the way they learn,So we have had many meetings at the school for both of them.I dread those meetings no matter how necessary I know they are.I hope your meeting goes well.

February 12, 2009 | Unregistered CommenterADDmommy

Awesome Molly. I hope the meeting goes well and this is great news.

February 12, 2009 | Unregistered CommenterOne Mom's Opinion

(((Molly))) wow, you have a talent for writing! I'm praying that all goes well in this transition!

February 12, 2009 | Unregistered Commenterhope4jackson

oh molly, my heart and good thoughts are always with you.
i think about the kid so much more now that i have a kid.
we met a kid like your kid the other day. he was so sweet and loved babies and so not rigid with the social boundaries of strangers on the street. joel loved it. there needs to be the kids everywhere so we realize sometimes that the rigid set up of our society is not perfect or so friendly.

February 13, 2009 | Unregistered Commenterjaci s

I hope it went well!

I've got an "Asperger-ish" second grader who is easily distracted. I know the words to your song. :) We've fought the good fight, haven't we?

February 13, 2009 | Unregistered CommenterDiVaughn

Miss Molly...I wish I was there to have a beer with you. I miss our afternoon sneak-a-beer-in days! Thinking of you and Will.

February 20, 2009 | Unregistered CommenterPJB

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