Here is a poem Jennie wrote, about our first 24 hour EEG test for our son's absence seizures.
The Blue Blanket
The blue blanket
was there for it all.
I grabbed it from my son’s crib
as we headed out the door,
handed it to him in the car seat
watched as his eyes opened in delight.
His fingers wrapped around it in pieces
rubbing each side,
as if he could capture in motion
the nervous flickers in my mind.
The blanket was dragged across the office floor,
shown to the clinicians with pride
while they prepared the glue
that would attach the electrodes to his head.
I admire the bond between blanket and boy,
to know that the sight, smell and touch of one piece of fabric
could bring about such safety.
I lay by his crib while he slept,
his head wrapped like a mummy
while a machine captured the motion in his brain.
I watched how this boy of mine
shifted about, half-dreaming
yet always holding one hand
on that precious blue cloth.
Jennie Linthorst is an expressive writing coach and the founder of LifeSPEAKS Poetry Therapy. She works privately with parents and caregivers of children with special needs helping them tell their stories and heal through reading and writing poetry and personal essays. Jennie coaches clients all across the country and around the world via phone, Skype, e-mail, in addition to in person meetings. Jennie tells her own story of mothering a special needs child in her book of poems, “A Mother’s Journey”. Her family’s story is captured in the award-winning documentary film, “Autistic-Like: Graham’s Story”.
More information is available at www.lifespeakspoetrytherapy.com and www.autisticlike.com